Rose - Did you get a firm dx? or what is your Doc calling it?

Invisable, I don't have a firm diagnosis yet. Dr. says might be small fiber neuropathy, after I suggested it. Before that was told nothing wrong! So now I'm finally getting skin biopsy next week, after insisting on it.

fascicullations
 

I would like to know what is causing this to happen to you ? Is the pain in both your legs and what is being impinged to cause fasciculations? What meds are available for it?

Benign?
 

Benign pain? I guess it would be benign if it was warning me to get hand off the hot stove but pain for unknown reason? How can damaged or dying nerves be benign? :rolleyes:

No kidding right! Its amazing what doctors say. I spent an hour telling a Dr. I had pain without loss of any sensation and he diagnosed me with "numbness!" Just goes to show how much they just don't listen.

There is a condition called BFS which is defined here: http://en.wikipedia.org/wiki/Benign_...ation_syndrome

I have been helped enormously by putting an unwrapped bar of soap under the bottom sheet of my bed. I read about it when it was posted here a few months ago and by golly, it works! I know it sounds totally nuts but since using the soap trick, I've been muscle-cramp-free.
For more testimonials, google "muscle cramps cured by bar of soap."

I suffer from chronic neuropathic pain and fasciculation
 

I'm hoping someone can help, i was in a car accident many years ago, and permanently injured my nerve, causing chronic sciatic pain shooting down my right leg and fasciculation in my right leg. The fasciculation in my right leg has increased in intensity so much in the past six months, I'don't know what to do, It has recently started happening in my left leg also. My neuro specialist put me on baclofen for the past three years at the max dosage, but I am crawling up a wall, i can't sleep (even with sleeping aids).

I feel like i am going to loose my sanity...........

can anyone give me an alternate treatment????

please help!

Pat

It's no fun...
 

to be twitching 24 hours a day. I know what you are going through and it is a real ****** and quite frightening wondering what the heck is happening.:confused:

I started in March 2011 4 months after my weakness and foot drop started I was given a BFS diagnosis too, even with foot drop, weakness, and abnormal EMG, idiopathic PN. After much time and almost begging for an explaination, tired of hearing "don't worry" I was told the BFS was a response to my irritated and very irritable nervous system.

I took mag ox which really did not help and learned to live with them. I am no longer anxious about them, they are disruptive at night but....like many others
I was just started on Lyrica for neuropathic pain and tho' I hate the side effects, my fasics greatly decreased in intensity and they are occuring much less. Took the med for a week before the improvement. Individual response to Lyrica is varied, quite frankly if I was offered the medication strictly for fasiculations, I would chose to twitch.:eek::eek::eek:

By benign the docs are infering the fasiculations are not related to motor neuron diseases like ALS or demylinating diseases such as MS. For that I am very, very grateful to be diagnosed benign.

I go thru episodes of fasiculations, which will go on for weeks, then it seems to stop. I haven't noticed a pattern, or a medication that helps it.