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Old 05-27-2010, 09:48 AM #11
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ann-elizabeth,

After an excruciating and severe autonomic attack (I was hospitalized), I developed numbness in my mouth, face and head (also fingers). It was not painful but very disturbing as it felt as though I had received lidocaine from a dentist. It persisted for about two months and then gradually went away. My left arm and fingers are still a problem - the upper arm (bicept area) is extremely painful and the thumb and three fingers are numb, but the mouth and face issue never returned.

Perhaps, your condition may pass. I also get the muscle facilations from time to time.

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Old 05-27-2010, 02:47 PM #12
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Quote:
Originally Posted by Mrs.D View Post
ann-elizabeth,

I also find that the scalp problems (which I get sometimes. itching..especially from nightshade veggies), are gone when I use a high dose antioxidant. Since I started 300mg of grapeseed extract for my allergies, the scalp thing is gone. There is that antioxidant in my Krill oil too, which may be helping.
Mrs.D
Mrs-D- wondering if you have tried Sulphoraphane Glucosolinate like Broccomax. It knocks out any sinus problems, allergies and asthma. I have been taking it for 2 weeks(used to take grapeseed-great as well) It also supports stage 2 detoxification. It is hands down the best thing I have taken for allergies. It works by increasing antioxidant levels in the nose and lungs where environmental toxins cause problems.

Anyway--Question about Benfotiamine and your dosage. How many times a day, how much and what brand are you using? I have been using Source Naturals and I don't know if its working anymore or maybe just the summer heat coming on. Thinking about checking out Dr.s Best.

Thanks,

-aeb
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Old 05-27-2010, 04:33 PM #13
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Lightbulb

I'll have to look into what you posted.
I'll get back to you.

For the benfotiamine I use Doctor's Best. I only take 150mg a day now, but when starting at least 300mg a day would be the minimum for at least 2-3 months or so.

I found a site that recommends more: But that would be up to YOU.

http://neurotalk.psychcentral.com/post653193-4.html
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Old 07-06-2016, 03:27 PM #14
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Quote:
Originally Posted by ann-elizabeth View Post
Hello,

I've been around for a while with idiopathic PN primarily sensory but do have a LOT of muscle fasiculations. My feet and legs twitch all the time. A few weeks ago, my left upper arm started twitching. About a week later, I noticed that my lips and cheeks were buzzing/tingling. I acutally thought I was hyperventilating, but now I have fasiculation in my face, so I know it was the neuropathy. At the same time, my right upper arm started twitching.

I have had my magnesium levels checked and I know I am not deficient there and I always add epsom salts to my bath.

Have any of you had neuropathy symptoms in your face? If so, how did you treat?

Ann
I really like to know, how you are doiing now, after so many years? I am dealing with the same thing als after an Mortons neurome.
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