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Old 06-18-2010, 10:07 AM #11
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Remarkably, I am very alive, with my quite severe 'dysautonomia' which in my case is autonomic neuropathy....Oh, and also, I have sensory PN too....which affects the motor functions.

Relax...you can manage this, more or less. Yes, it is a challenge, but, you can manage it.

The biggest thing is not to panic over the changes going on in your body....learn to roll with it.

Hey, Mrsd, I have similar flowers.....they are so pretty. This year, I went bonkers on Astilbe too. I found some very nice plants on sale for $5, big ones too!
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Old 06-18-2010, 01:04 PM #12
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Quote:
Originally Posted by mrsD View Post
Yes, burping up Valerian extract is a one time event...few have any fortitude to continue after that experience!

You said it very well, Rrae, and gave me my morning chuckle!
Yes,.... kinda like trying to pick up a turd from the 'clean' end?
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Old 06-18-2010, 05:11 PM #13
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ooooh my.....I will definitely skip Valerian. The turd image pretty much made up my mind.

Any idea what to do with all the spearmint growing in my garden??

Is bee balm good for anything?
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Old 06-18-2010, 06:08 PM #14
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Hey Sallyblooms, Cyclelops is absolutely right. You need to roll with it, otherwise, you will have an anxiety attack. Your body does not need that - your catecholemines are all ready out of whack!

I also have SFN and autonomic neuropathy and fibromyalgia and arthritis thrown in just because they sometimes go with it all. I have been sick for about 18 years after having a mycloplasmia pneumonia. I realize you feel like your going to check-out with the symptoms, they are horrible, but Cy and me are still here and we have been sick a long time with this crap!

If you need a doctor, go to the website http://www.dinet.org/physicians.htm

this is a list of doctors that specialize in dysautonomia. Many doctors (even neurologists) do not always know how to treat it properly. At least that has been my experience. I am now seeing a specialist that was listed here.

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Old 06-18-2010, 08:43 PM #15
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Thank you. I talked to my CFS doctor today on the phone. I started Alpha Lipoic Acid today. I see her in the office next week.
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