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Old 06-17-2010, 07:08 PM #1
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Default Please help me calm down

Hello. I am shaking. I have been ill for years with Chronic Fatigue. Then last year, I got VERY ill with what I think now is Disautonomia.

I was watching a You Tube video about it and they mentioned small fiber neuropathy. I was sick. I think I have that in my feet. I am sure this all goes together.

I am going to see my doctor next week, but I am shaking, reading Google about it. I am lucky I also found your site about supplements that help.

I really need some guidance. I can hardly type, so nervous and afraid. Seems like I keep getting one thing after another. Things that are hard to help. I have been reading about supplements here and that gave me hope. I already take b12 pills and lCarnetine and many others, guided by my doctor.
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Old 06-17-2010, 07:29 PM #2
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Does Benicar cause PN, Levequin? I am on Benicar.
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Old 06-17-2010, 09:27 PM #3
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...Deep Breath......
There's so much caring support here....... you are doin a good thing by concentrating on the supplement suggestions here.....
......focus more on that....maybe stay away from google for awhile.....
It ended up having me convinced I had 101 different terminal illnesses....

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Old 06-17-2010, 09:41 PM #4
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Sally,

The amino acid Taurine is a huge, quick help for anxiety, pain and detoxification. I take 2 grams daily for Neuropathy. The herb Bacopa is also a quick route to releiving anxiety and neuralgic symptoms.

Taurine:

http://www.articlesbase.com/health-a...y-1053498.html

Bacopa:

http://www.anxiety-and-depression-so...a_monniera.php
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Old 06-17-2010, 10:07 PM #5
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Thumbs up Thanks aeb105

I didn't know there were these other options for anxiety!

The only one I knew of is "Valerian Root", which stinks like the back end of a skunk!!!
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Old 06-18-2010, 05:18 AM #6
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Hi I know it is hard to stay in the day but until your doctor appointment I would try hard to not get ahead of yourself. For me when I read about some health problems it sends fear into me which helps me in no way. What type of doctor have you seen and who mentioned or dx you with Disautonomia? Are you under any other treatment then supplements? I know it is hard to not get scared cause trust me life feels that way but I am really practicing to be more calm and not get ahead of myself. I hope your doctor can give you some answers
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Old 06-18-2010, 08:28 AM #7
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You haveta go to a neurologist who's a PN specialist
to really know if you have PN.
Other ailments such as fibro, MS, CTS, TTS, mimic PN.
It is a testing & elimination procedure.
Which tests and how to interpret them are most important.
There is no 'smoking gun' to test positive for the over
200 cuses of PN.
For a list of the tests to be administered - go to:
www.lizajane.org
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Old 06-18-2010, 09:11 AM #8
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Welcome to NeuroTalk.

Yes Levaquin has the potential for damaging the nervous system:

http://neurotalk.psychcentral.com/thread122889.html
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Old 06-18-2010, 09:31 AM #9
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Quote:
Originally Posted by Rrae View Post
I didn't know there were these other options for anxiety!

The only one I knew of is "Valerian Root", which stinks like the back end of a skunk!!!
Yes, burping up Valerian extract is a one time event...few have any fortitude to continue after that experience!

You said it very well, Rrae, and gave me my morning chuckle!
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Old 06-18-2010, 09:40 AM #10
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I have some Lipoic Acid Supreme from Designs for Health. I had them from my CFS doctor. Haven't taken it yet. Has Tauring and Lipoic Acid.

I have to sit all day. I have Disautonomia. It seems like having my legs on the ottoman make it happen or at least make it worse.

I will see my doctor soon, I have an appt.

I am sure if I do have it, it goes with the CFS/Disautonomia.

I had to go on Leviquin a year and a half ago. Seems a bit far back, but I did get on Benicar this fall. It is supposed to protect the kidneys and be good for the high bp.

I do hope I am wrong. I just don't want one more problem.

I do not have anxiety, but after I read about it, I got so scared. I have been through so much for 18 years with CFS. Thank you for being there.
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