Hello! I'm kinda new here. I used to frequent the RSD board, but found out that I don't have that. I guess a brief story is in order.
July 5 of last year I thought that I had messed up my knee (again, had 2 surgeries on it already...but fine), so went and got it checked out....nothing. But b/c my MRI showed some speckled replacement of fatty marrow in my femur and tibia...presto-chango I got RSD. So i went to a pain specialist, got told it wasn't RSD (i'm like "duh!') and instead had some minor bulges in my Lumbar, so I got 2 injections into my spine (which made it worse). So told that guy where to shove it. Went to a neurologist (1 hour way) and he said it ain't my spine or RSD, had a butt-load of blood work done (all neg ) and a nerve conduction done (which we all know pretty much only checks the CNS nerves) and they were all fine. So got a referral to a university hospital (5 hours away) to see a spine specialist and another neurologist. Well, finally got into see them first part of June. Nothing with my spine and the neurologist (which i actually ended up seeing 2 of them at the same time ) And they both came to the same conclusion: it ain't in my head, but they ain't really sure. So (drum roll) they are about 95% sure that i have a compressive neuropathy, probably somewhere along my inguinal canal or somewhere around there. So I was referred to a GYN....and he is now referring me to a hip ortho. Dude! do I ever feel like a ping-pong ball of "here, you take her, not my prob!"
So....what i am wondering is if ANYONE has heard of this, has it, any ideas, any clues.... I didn't even bring up the pain, b/c i really don't like to think about it, makes it hurt more
Hope all is going as well as possible for everyone and HAPPY 4TH OF JULY!!!!
Penguin