Hi,

I'm in U.K. and new to forum

Symptoms - 3 months

Had brain/spine scan, E.M.G and NCS - awaiting results from consultant. Doc. who did EMG said no evidence of MND or nerve damage apart from my carpal tunnel. Docs wondering Benign Faciculation (BFS) as had this 10 yrs ago. I don't think it fits - very different to last time.

Started anti depressants because of symptoms - Anxious it could be ALS/MND. Much calmer now - This is not psychosomatic.

Any of these symptoms familiar? I know you can't diagnose but any opinions very welcome:

Present symptoms

Fascics - jerks - limbs,fluttering, up and down movements, or shallow rippling under the skin - can sometimes feel if leg in certain position and can sometimes be seen. Cannot see rippling in sole of foot but can feel it and can see toes moving side to side. Twitching become less recently.Areas that I twitch - left arm, left leg, right ankle area, left foot, left buttock and groin, throat, tongue, face, left eye

Slight tremor in hands - comes and goes

Cramps - lots of areas - can be very short lived, or can continue for ages leaving the area very achy - both legs and feet, both arms and hands, buttocks (all these more so in left), tongue, throat, jaw, cheeks.

Mild stiffness in fingers and toes - comes and goes

Swallowing liquids feels odd

Speech beginning to feel slightly affected - tripping on tongue

Biting tongue and inside cheeks as I speak and I think when I sleep - mouth full of ulcers

Cough shallower

Chewing - slightly affected


Sensory symptoms - All very mild . numbness and tingling in left hand and foot initially but not so much now - if I do seems to be after lots of cramp in that area
Bits of tingling - short lasting and not often - eg fingers
Mild burning sensations - various areas - across top of back, limbs.
Legs sometimes feel "empty"

Joints feel vulnerable - especially knees, elbows, ankles. May have bits of arthritis that could complicate this but not aware of this before except in right knee. clicking in joints - especially right ankle

Weakness - left hand feels slightly weakened and clumsy - drop things and hurts in hand and arm when pick up objects e.g. mug of tea. Hand sometimes feels tender to touch. Left foot feels as if not holding me steady e.g. when getting dressed and lifting up right leg. Feel my walking slightly odd to balance myself.

Muscles feel softer and wonder if signs of atrophy - behind left knee, left arm and hand, face looks a bit droopier than normal, my left buttock feels uncomfortable when sitting and and sole of left foot sore on standing - wonder if atrophy - buttock looks a bit saggy.

Really appreciate anyone responding. Sorry so long but didn't want to miss anything out.

Hello and Best Wishes to all.

Jean

Hi, Jeanie in the U.K. -

Nice to "meet" you - just spoke with my sister-in-law who lives in Worthing, East Sussex (I'm American).

Good gracious, sorry you are having so many symptoms but no answers as yet and that I don't have what you describe.

Anyway, have you been able to schedule sooner rather than later with a good neurologist and rheumatologist? Your symptoms are so vast that it might require a team of specialists docs to sort this out for you.

Please keep us posted as to what's happening.

Best wishes,

Barbara
a/k/a Sheltiemom