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Other than IVIG for specific cases, the current RX medications do not work to do anything for neuropathy other than suppress symptoms. They do not heal anything.
Here is a link with numbers and discussion about types of bariatric surgery and neuropathy outcomes. http://docnews.diabetesjournals.org/content/2/1/9.full I would suggest you get your B12 numbers and not rely upon "normal". Ranges in the US go down to 200 and at that level there can be significant nerve damage. If you were taking something at the time of the testing, the numbers reported may be high for that time only and not reflect other time periods. Going off the vitamins for a few days before testing, is what most people do. A multivitamin with 200% RDA B12 is nothing (RDA for B12 is typically 4 micrograms so 200% RDA would be 16micrograms. Typical oral B12 is in the 30,000 % range because only a tiny amount ever gets absorbed. Not much if anything from 16micrograms would be absorbed orally) I know you are frustrated and in pain. This just makes everything more difficult because stress increases cytokines (inflammation chemicals) in the body, which then affect blood circulation, and healing. Have you tried soaking your feet in epsom salts? This can help and if you do it 2 or 3 times a day, by the end of a week you may see some change in your pain levels. It takes a long time to heal when nerves are disturbed/damaged. My feet didn't return to a more normal level (absence of pain/numbness) until a YEAR into my thyroid fix. It took that long! Also I don't recall your saying you have had mechanical evaluation of your feet Xrays, etc? ... Gout, and pseudogout, are possibilities, as are broken sesamoid bones in the ball of the foot, and neuromas. If there are color changes in the feet, and sweating, then RSD is a possibility too. One thing may lead to another unfortunately.. and all have to be considered. Quote:
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Yes, I have had Xrays done, and they have looked fine. I have also had a sweat test done, etc. I doubt I could handle epsom salt--I can't even stand to run plain water over my feet in the shower. I avoid getting my feet wet as much as I can. I was taking Lyrica and just ran out of samples and my doctor's nurse forgot to send more so I had to just stop taking it abruptly.. we'll see how that goes to just go off without tapering off... the only thing left to try is Cymbalta.. after that they said they don't know what else to give me... so frustrating... basically it's the last resort and if that doesn't work... I'm in trouble. |
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I know one person who died from complications of the surgery and i know of a few others who have had it and none of them were ever informed of the need to supplement their diet because of the reduced absorption of nutrients due to the surgery. this is a great failing in my opinion. There are no miracle cures for PN and no treatments that dont have tradeoffs of one kind or another. The same goes for weight loss methods. |
Hi, Lyrica and Neurontin don't work for me, either. But a doctor @ Johns Hopkins recommended I take Lexapro [an antidepressant] and this actually helps my nerve pain.
Kate Quote:
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Sarah, I am wondering if you have RSD... the severity of your pain response, is more like them. Also your feet and legs turning purple and swelling? Also a sign of RSD.
Here is a thread from the RSD forum showing pictures. Some are mild, some severe. http://neurotalk.psychcentral.com/thread16167.html A metabolic PN would be affecting your hands too I would think. And your history of back problems and arthritis, are perhaps adding to your foot issues. RSD can be hard to diagnose. So posting over there may get you more information about this disorder. RSD and PN can co-exist in the same patient. |
I don't know. A family friend just asked me last night if I had RSD. She had read a story on Fox News about it, and wanted to know if that is that I had had. I told her that I had PN, but that I'd talk to my neurologist about it and see what he thought. I researched RSD last night and it doesn't sound like what I have. I relate to some of the symptoms, but not a lot of them. I did look at those pictures on the thread, though, and it is very different. My legs no longer turn red--they turn dark purple.
I don't have any problems in my hands... just in my feet. I am still going to ask my neurologist, just in case. The website that I was reading last night listed some tests that are done to check for RSD and a few of them are tests I have already had for PN, so I would think that they would have caught it if I do indeed have RSD.I don't thnk I have enough of the symptoms fo have it. |
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