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07-14-2010, 10:05 AM | #1 | ||
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Diagnosed with PN in June still don't know the cause all blood work has come back normal no diabetes, thyroid problems MRI discovered 2 disc protrusion with annular tear, also moderate lumbar levoscoliosis. was sent to a Physiatrist who did nerve test and believe condition is because of AIPD. Pain started in the feet and progress within two days to upper chest, tried neurotin didn't help now taking tramadol, pain has subsided to the point i can walk without severe pain, still have tingling in feet and legs, shooting pain in right leg. Go back to the Dr. next week waiting to see whats next. I have been reading a lot here.
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07-14-2010, 01:38 PM | #2 | |||
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Senior Member
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what is AIPD?
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07-14-2010, 02:11 PM | #3 | ||
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New Member
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Sorry typed wrong it is AIDP (Acute Inflammatory Demyelinating Polyradiculoneuropathy)
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07-14-2010, 02:58 PM | #4 | ||
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I too have PN, and it is so annoying, hope you have a good doctor, Nuerontin and Lyrica will help and so will vitamins. I try to move around as much as I can. I walk some everyday. Take care and chin Up!
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07-14-2010, 08:03 PM | #5 | |||
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so you have a diagnosis of aidp because of the emg? have you had any blood tests for autoimmune markers?
Last edited by echoes long ago; 07-15-2010 at 03:31 PM. Reason: spelled out cidp instead of aidp mistakenly |
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07-15-2010, 07:11 AM | #6 | ||
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07-15-2010, 07:15 AM | #7 | ||
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Magnate
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--is a more physican technical way of saying what most of us would know as Guillain-Barre syndrome. (The term would be more specific than Guillain Barre, specifically desinating the mot common variant and excluding some of the less common ones that are grouped under the syndrome.)
See: http://www.jsmarcussen.com/gbs/uk/overview.htm |
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"Thanks for this!" says: | dsole (07-16-2010) |
07-15-2010, 11:21 AM | #8 | |||
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I am not aiming this at you directly, but I get frustrated when I hear people saying things like this. "Lyrica will help" "Neurontin will help" "Vitamins will help" I've been on all of those... I've tried all three of those.. I've tried Topamax. I've tried so many things and have not found any relief--in fact, the PN has gotten much much worse over time, even though my vitamin levels are all at normal levels now. Lyrica and Neurontin are not the answers for everybody--they do not work for everyone. They aren't magical cures... what works for one will not work for another... they sure haven't worked for me. =(
Again... this isn't meant to be aimed directly at you.. but I see a LOT of people saying that one specific medicine works best... when in reality, that's not true--it depends on the individual.
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. ♥ "Hope is more than a word; it's a state of being. It's a firm belief God will come through. Life brings rain... hope turns every drop into the power to bloom like never before." -Holley Gerth ♥ My name is Sarah and I am 25 years old. I have a lot of chronic health problems. Peripheral neuropathy and POTS (postural orthostatic tachycardia syndrome) keep me bedridden the majority of the time. I also struggle with degenerative disc disease, disc desiccation, spondylolisthesis, arthritis, polycystic ovarian syndrome (PCOS) with insulin resistance, allergies, sound sensitivities, and other health problems. |
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"Thanks for this!" says: | JoanB (07-17-2010), malawigirl08 (07-15-2010) |
07-15-2010, 12:44 PM | #9 | |||
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Wisest Elder Ever
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Other than IVIG for specific cases, the current RX medications do not work to do anything for neuropathy other than suppress symptoms. They do not heal anything.
Here is a link with numbers and discussion about types of bariatric surgery and neuropathy outcomes. http://docnews.diabetesjournals.org/content/2/1/9.full I would suggest you get your B12 numbers and not rely upon "normal". Ranges in the US go down to 200 and at that level there can be significant nerve damage. If you were taking something at the time of the testing, the numbers reported may be high for that time only and not reflect other time periods. Going off the vitamins for a few days before testing, is what most people do. A multivitamin with 200% RDA B12 is nothing (RDA for B12 is typically 4 micrograms so 200% RDA would be 16micrograms. Typical oral B12 is in the 30,000 % range because only a tiny amount ever gets absorbed. Not much if anything from 16micrograms would be absorbed orally) I know you are frustrated and in pain. This just makes everything more difficult because stress increases cytokines (inflammation chemicals) in the body, which then affect blood circulation, and healing. Have you tried soaking your feet in epsom salts? This can help and if you do it 2 or 3 times a day, by the end of a week you may see some change in your pain levels. It takes a long time to heal when nerves are disturbed/damaged. My feet didn't return to a more normal level (absence of pain/numbness) until a YEAR into my thyroid fix. It took that long! Also I don't recall your saying you have had mechanical evaluation of your feet Xrays, etc? ... Gout, and pseudogout, are possibilities, as are broken sesamoid bones in the ball of the foot, and neuromas. If there are color changes in the feet, and sweating, then RSD is a possibility too. One thing may lead to another unfortunately.. and all have to be considered. Quote:
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07-15-2010, 04:17 PM | #10 | ||
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New Member
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Hi, Lyrica and Neurontin don't work for me, either. But a doctor @ Johns Hopkins recommended I take Lexapro [an antidepressant] and this actually helps my nerve pain.
Kate Quote:
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