[cyclelops]

There is really no giving in to this disease and hoping you feel better....

Nope, rocking in the rocking chair watching HGTV makes no difference to working like a dog in 90 degree heat cleaning out a chicken coop. Actually the latter makes one feel temporarily better when one re-enters the air conditioned comfort of the home and plops in the rocking chair to watch HGTV....until the realization hits that one is in pain from all the work.

You are d@mned if you do and d@amned if you don't.

Sit, stand, lie down....nothing makes a difference. Pills make ya sick, as in dopey, mopey, dizzy, whizzy, pukey.


Pfffff.....this disease stinks and it gets little press.

I could think of a dozen other conditions I would rather have, some with their own special colors! If PN had a color it would be....gray....plain old cr@ppy gray. I could pin a gray or grey ribbon to my lapel and say this is what I feel like with this disease. (Not that gray can't be stylish....it just isn't inspiring)

I gotta go and find some trouble to get into to make me forget my color is gray.

[cyclelops]

I see under my screen name it says, 'senior member'....does that come with a discount or are you guys just reminding me of my 'gray'?

[Feel the Burn]

Originally Posted by cyclelops

I see under my screen name it says, 'senior member'....does that come with a discount or are you guys just reminding me of my 'gray'?

Means you can join AARP,,, but I know Cyclops how you feel,, do something,, be in pain,, do nothing,, be in pain,, look at the pill bottles and wonder which one just might take the edge off for at least 5 minutes,,, I;m tired of crying in the darkness,,, there has to be something in this huge world or ours that can make our lives more managable,,, I wish my family understood,, I am so tired of just sitting in a lounger,, getting up,, stumbling around like a drunk,, guts in overdrive,,, and just wondering at what point does it all just come to a head where you actually lose your mind,, I admire your acceptance of this thing called PN,,
I have watched my family come apart over this,, I have lost my wife,, she doesnt understand this horror show,,, my sons dont see it,, I go over to see my sister next door,, tel her how bad it is and she tells me her fooot hurts,,, want to trade,, take my body for a hour and i;ll take your foot pain,,,
Lifes hard right now

[Feel the Burn]

Gray would be good,,, I have a gray shirt on today,,, kinda matches the whole body PN we feel,,,

[Sheltiemom18]

Think "grey" looks/sounds more Brit - like that better than "gray."

Either way, PN of any stripe is beyond bummer. It's as if one day somebody just used a dimmer switch on us, set it way down low and made it stick in that position.

I know that feeling sick all the time is much worse than not, having had one illness that almost killed me when I was 30 - hepatitis/jaundice from shellfish - but I did recover after a year, obviously.

But it's still a dirty trick to wake up feeling pretty doggone good only to have it fade away as the day goes on and realize the SFSN is still here.

Shucks.

Best wishes to all,

Sheltiemom

[peppermintpatty]

I know the feeling. Had family in town today & took it for all it was worth, which means I'm already pretty roughed up from it. Hate to think of what tomorrow will feel like, but hate even more the thought of missing time with family....