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-   -   Replay on Neurontin (https://www.neurotalk.org/peripheral-neuropathy/129788-replay-neurontin.html)

JoanB 08-17-2010 02:15 PM

Quote:

Have I been dooped and am getting placebo ? Or is my tolerance so off the charts that my body doesn't recognize ANY form of pain med unless it has the extra power punch requiring the DEA overlords scrutinization.....
I hear ya Rrea! Seems like nothing touches my pain. My lastest trial is amitriptyline. Thought it might actually be helping, but now I think it was just a few good days that happen once in a while. Seems like they're selling us sugar pills, er sumpin', don't it? At least amitriptyline is a much cheaper sugar pill.

Rrae 08-18-2010 05:21 AM

Yep, I hear ya.....
Ain't this just a fun pocket full of pozy's playing the pharmaceutic game?
To heck with trying to put together a financial portfolio!!
Let's just throw all our $$ in the drug industry. As if we haven't been thus far
Arrrg!

smae 08-18-2010 08:01 AM

I got neuropathy after gastric bypass surgery, and my body literally cannot handle/process/absorb (don't know what the right word is) pills. Therefore, not only do none of the typical medicines for PN work for me (Lyrica, neurontin, amitriptyline, etc), but pain medicines don't even work at all (Tylenol with codeine 3 or 4 or Oxycodone). Luckily I was just put on the fentanyl patch--but the first one worked and the second and third have not. Frustrating... finally got a little bit of relief and now it's gone. If medicine truly is the only option for treatment, I'm a hopeless case.

cyclelops 08-18-2010 07:29 PM

That is odd that the second and third did not work....did you just pull it off then? That is a nasty wean! I assume you had other medication to take? Cold turkey off fentanyl is very difficult.

cyclelops 08-18-2010 07:33 PM

Stupid mosquitoes must like my meds....I got bit on the eyelid! They are like kamakaze pilots....they crash and bite...cripes, I itch everywhere, and am not sure my tomatoes or chickens are worth it....ugh.:( They care nothing about Deep Woods Off....I am more likely to die from the bug repellent than they are.:eek:

Where did I put my triamcinolone cream?? Ugh...thanks to the Morontin, I can't remember.:mad::mad:

Rrae 08-18-2010 10:02 PM

Morontin.....
 
......is that in the same family as 'Dingbatazapine'?

......or....wheredidIparkmycarzine ?

cyclelops 08-19-2010 09:03 AM

Most definitely......I found the triamcinalone cream.....in my silverware drawer.

lizziebeth 08-19-2010 10:08 AM

Morontin
 
Morontin...That's perfect!!! In the early stages of my slow Neurontin titration which began 20 days a go, I was very pleased that I appeared to be having good effects without any adverse reactions. I did notice that I was feeling more anxious, but blamed that on my tendency to experience this at times...and after all I was venturing beyond supplements because the discomfort had gotten to the point of interfering with my sleep. I became frustrated, however, that the initial good effects I saw with each dose increase did not appear to be long lasting...and I once again was not sleeping much. Although, I have a tendency to be anxious at times and a bit OCDish, I have never been seriously depressed. I suddenly found myself awake all night...having crying jags, and most frightening of all, questioning whether I wanted to live like this. So I wipe the tears from my exhausted eyes and actually read those labels placed on the Neurontin bottle by the pharmacist and there it is...mood changes, depression...thoughts of suicide. So off the Neurontin I go.. so yesterday, first day off, my neuropathy is at the worst pain level I've ever experienced. After having only slept a total of 2-3 hours during the past 3 nights, I finally fall asleep for a few hours awakening with the worst migraine I've ever experienced...BUT I'm no longer depressed, anxious or semi-suicidal...and my neuropathy, at least for now, is at a tolerable level... So this am, for me, Morontin is the perfect description for my recent adventures in the land of pharmacueticals. On the bright side, since I called in sick today and my son is home for the next 10 days, in between his out-of-state summer job and his return to college, and I'm feeling so much better...we're off to the mall together and out to lunch:) By the way, I know that others have had good experiences with Neurontin, and my intent in relaying my experience was not to discourage others from trying it, but to serve as a warning of its mood altering potential for some...and it felt good to vent a bit!

Rrae 08-19-2010 07:41 PM

Thank you Lizziebeth
 
Good Feedback!

I'm glad you recognized that something wasn't right and took action.

I honestly feel as though I'm wasting my time in trying this med. It seems to work for others, but maybe I'm just wanting to see a big pink elephant in the room holding a neon sign saying "this med is working"......
The signs are subtle...and frankly after over a week and not feeling any difference, I'm probably gonna forget about it.

I just wondered if others remember if it took awhile to kick in or if some relief was felt sooner than not.

dahlek 08-19-2010 08:18 PM

For me? I KNEW I had to get off when.....
 
there were 'spidery shadows' lurking in my peripheral vision! Not only did I NOT take the increased dosages that prescribing neuro were doling out? I changed Neuros! Saved my life, doing that!
Weaned off of neurontin in about 10 days and onto other meds in increments. Got what was left of my mind back AND I could speak to someone in complete sentences and not fall asleep in the middle! [I'd been sleeping 18 hours a day on neurontin, hefty doses too]
I LOOVE that phrase: MORONTIN!
Didn't do diddly-spit for me other than turn me into a zombie.
It took two other tries on different meds until I found one that worked for me. But some folks swear by the 'N' pills and I guess I am different? But then, we ALL ARE different.
As for bugs? I avoid them whenever possible. I WELT amazingly after any insect bite, always have, but it's worse now. No tolerance whatever. I used to use SkinSoSoft until a few years ago when they'd changed the formula, it now includes sunflower seed extract oil [which in concentrate is toxic according to the FDA] and I'd broken out in hives you can't imagine! I squint at 'ingredients' for anything going on my skin for the SSEI poisons...
Citronella [sharp, not sweet types] and lavenders as cleaners or repellants are my 'friends' now.
Hope this all helps somehow? :hug::hug::hug:'s - j

As for your cream? Seems like you put it in a good, safe place!


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