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08-25-2010, 06:21 PM | #1 | ||
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I have had some autonomic symptoms - my neurologist sent me to a cardiologist for a tilt table test but he wouldn't do it. Says noone does anymore and insurance won't pay for it. If the problem - blood pressure drop when I stand (light headiness) gets worse I'm supposed to come back and he'll put me on some meds to see if it helps. The guy I saw at JH specialized in MS and and transverse myelitis. Those were ruled out. I think he ordered test for all the other stuff also. |
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08-26-2010, 04:31 PM | #2 | |||
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__________________
. ♥ "Hope is more than a word; it's a state of being. It's a firm belief God will come through. Life brings rain... hope turns every drop into the power to bloom like never before." -Holley Gerth ♥ My name is Sarah and I am 25 years old. I have a lot of chronic health problems. Peripheral neuropathy and POTS (postural orthostatic tachycardia syndrome) keep me bedridden the majority of the time. I also struggle with degenerative disc disease, disc desiccation, spondylolisthesis, arthritis, polycystic ovarian syndrome (PCOS) with insulin resistance, allergies, sound sensitivities, and other health problems. |
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09-10-2010, 05:02 PM | #3 | |||
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Then I had a Neurologist say " I don't know why your here and the best part he was on Mistery Diagnoses after my visit so kept the spirits up ! Its been two years and I can not tell you how many Doctors, tests, lab work, citys and States I have seen and been in and I do not have a dx yet Sue Bee |
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"Thanks for this!" says: | antonina (09-10-2010) |
09-10-2010, 06:29 PM | #4 | ||
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Magnate
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To be followed by more rules then even MORE RULES!
I'm off most pain pills, 'occasionally' either a tramadol or a tylenol! Why? Because the meds only knock things down 1/2 to one point on the pain scales. I have learned to live with the big TRADE-OFF! I live in pain? But, I've gotten used to the day-to-day. The real pains? I take a pill, yes, but don't expect much at all. Last year, when I'd broken my leg? I was on the BIG-TIME pain meds & a LOT of them. They didn't do too much for the pain, per-se? But they sure muzzied the brain so I didn't care so much. I've gotten used to the pains, I'm not happy with them [at all!] But, I like having my mind in the here and now for when I truly need it! It's not excruciating as it was at onset, that or I'm simply used to it now. Some suggest that I go to a 'pain specialist' on occasion, I refuse- and will continue to do so until I really can't stand it any longer! Besides? I've not heard of anyone stellar in my part of the world, and I don't want to sign my life away to extra psych evaluations and other crud that really isn't necessary. My current docs control my pain meds, one doc prescribes 95% of them, except in the emergencies.... I don't abuse them? I hate the constipation! THAT is a trade-off we don't need to deal with! IF we can avoid it. Heaven help us all! !'s - j |
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09-10-2010, 06:55 PM | #5 | ||
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I have to sign a contract once a year, doesn't bother me much. What did bother me was a random urinalysis, not because I abuse or use too much, but because it cost 500.00! My insurance paid 80%, but still I thought it was an error. I called billing and she says nope, not a mistake....they were looking for every drug known to mankind, including no trace of drugs! Found out then that people go there and get pills only to turn around and sell them on the "street", so if I had no narcotics in my system I'd be kicked outta there forever. I never thought at 54 that I would be in such lousy shape or need narcotics and I feel like a dirtbag every time I go there, most patients there have lived the hard life, at one time I looked down my nose at them.........karma I guess for being such a pious snot! Just joking.......
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09-10-2010, 07:44 PM | #6 | |||
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Magnate
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Jannaw, my feelings exactly. To think they used to trust me enough to dispose of narcotics in the old days. We used to count them and flush 'em. I am sure the fish downstream appreciated it.
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Some days are not so good . . Others not so bad: . |
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09-14-2010, 09:34 AM | #7 | |||
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This subject gets me so angry! Between having someone hand me a cup to pee in before anyone even talked to me for a job interview yesterday and anxiously waiting to see what my mother's hospice care is going to do for her pain, I feel like defacing drug-free zone signs in the dead of the night. There have always been drugs. If you don't want your children to use them, deal with your children, don't punish the rest of us who might need them!
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PPMS Rx 2013, symptoms since 2000 |
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"Thanks for this!" says: | jannaw (09-16-2010) |
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