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Old 08-25-2010, 08:26 AM #1
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A comprehensive list of all the tests for various neuropathies
can be found at www.lizajane.org.
You can use it as a checklist to see what you have
and have not been tested for.
I too, go to Hopkins- and at one time was referred to the pain clinic, by
a neuro who was taking my doc's patients when he was on surgical leave.
This neuro didn't have a clue (my neuro would've handled it differently)!
The pain clinic is run by the dept of anesthesiology.
They are 99% drug oriented and highly suspicious of everyone
as a habitual drug user and opiate addict.
They were not able to help me, and when my doc got back from sick leave,
we both worked out a better treatment for me.
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Old 08-25-2010, 06:23 PM #2
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The doc I have an appointment with also does some Neurostimulation and I'd like to take less drugs so we'll see
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Old 08-25-2010, 07:24 PM #3
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they still do tilt table tests here in the nyc area
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Old 08-27-2010, 03:48 PM #4
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Quote:
Originally Posted by nide44 View Post
A comprehensive list of all the tests for various neuropathies
can be found at www.lizajane.org.
You can use it as a checklist to see what you have
and have not been tested for.
I too, go to Hopkins- and at one time was referred to the pain clinic, by
a neuro who was taking my doc's patients when he was on surgical leave.
This neuro didn't have a clue (my neuro would've handled it differently)!
The pain clinic is run by the dept of anesthesiology.
They are 99% drug oriented and highly suspicious of everyone
as a habitual drug user and opiate addict.
They were not able to help me, and when my doc got back from sick leave,
we both worked out a better treatment for me.
After reading Bob's description of the pain clinic at JH, my blood is once again boiling. Being a health professional we were taught that the patient's pain IS what THEY say it is. People react differently to pain. I have had patients cry, laugh, talk a mile a minute, sleep and a whole host of other behaviors because they were in pain. Does it mean if you laugh, you can't be in pain? Shame on those folks at JH pain clinic for treating ANY patient in that manner. We also learned that people who are addicted to pain medication require higher doses of meds to treat their pain, you just don't tell them to suck it up and get on with their life. Dang it, that makes me mad. It is no wonder physicians are being sued for not treating pain appropriately and aggressively enough. You can bet if they are hurting, they will be treated, pulling out all of the stops, until their pain is under control. Sometimes I am embarassed to be associated with the medical profession. But here again, it goes back to being your own advocate. I tell them I want to discuss options, not just be "told" my options. They won't treat my family that way either. I will become their worst nightmare.......sorry for the rant!!
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Old 08-27-2010, 08:00 PM #5
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they are running scared from the DEA.
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Old 08-28-2010, 09:31 AM #6
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they are running scared from the DEA.
It is a shame that people, here in the United States, continue to suffer in pain. As a country we do a p**s poor job at treating pain when we have SOOO many resources available to us. Many moons ago doctors use to use the excuse "I can't prescribe narcotics because I will get investigated by the DEA." It is called "proper documentation" folks. Do the work-up, document and treat the patient. There are cases now where payment is being withheld because the presence of pain and pain control were not addressed. Maybe if we did a better job, people would not be forced to control their pain using illegal resources. OK...stepping down now. I guess in a perfect world we wouldn't even be having this conversation........and we would all be pain free!! Dream the dream.
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Old 08-28-2010, 10:31 AM #7
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Thumbs up Please don't step down!

By Golly! I wanna nominate YOU for our next president!

Echoe's is pretty much on target and it IS a crying shame!
I don't know who to be more peeved at.....the DEA cracking down in such an 'over the top' manner OR the Doctors who won't, like you say -DICTATE it in the med records.
The subject of suicide was brought up when I expressed my concern regarding the fact that a person can only take so much chronic pain....and HE (needle jockey) SAID "oh yeah, just last year i lost one of my patients, she took her life" and the way it rolled off his cuff made me want to SLAP him! Because she either couldn't afford or insurance wouldn't approve his $$$$$ techniques (not sure of the details) she ended her life.

I'm FAR from being a genius, but I do know that the suicide rate would be substantially LOWER if pain were better controlled without the patient having to feel like a pathetic drug-seeking lowlife to GET the pain control.
I saw with my own eyes here in my town......a friend of mine found her brother dead out in a shed, took his life because he just couldn't take one more day of the pain he was racked with. He had no insurance.
He was only in his early 50's.

In a way, either way you look at it,.....the street recreational drug user/addicts WIN. The DEA has cracked down so strongly because of these people (and they're STILL gonna find their 'fix'!)........this leaves us going thru hades to get adequate pain treatment.
Good Lord can we re-wind a bit here and remember that the hardest core drug was a standard ingredient in cough syrups and meds for anxiety-ridden young mothers in the great depression......but by golly it was taboo to have alcohol?
Not to get all political here, but MAN. Now, sllllllowly, cannibus is finally becoming 'ok' in the eyes of Gov't. (sort of), but that still doensn't really address pain in general. Some folks aren't holding their breath on this as a great cure for pain.
DEA may think they are 'saving lives' by the way they've got Dr's scared of their crackdowns.....but look how many suicides are being carried out?
Lives are being lost regardless.
Ok, i'll give you back your soapbox.....

Last edited by Rrae; 08-28-2010 at 12:01 PM. Reason: rant typo
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Old 08-27-2010, 08:46 PM #8
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Quote:
Originally Posted by kpRN View Post
After reading Bob's description of the pain clinic at JH, my blood is once again boiling. Being a health professional we were taught that the patient's pain IS what THEY say it is. People react differently to pain. I have had patients cry, laugh, talk a mile a minute, sleep and a whole host of other behaviors because they were in pain. Does it mean if you laugh, you can't be in pain? Shame on those folks at JH pain clinic for treating ANY patient in that manner. We also learned that people who are addicted to pain medication require higher doses of meds to treat their pain, you just don't tell them to suck it up and get on with their life. Dang it, that makes me mad. It is no wonder physicians are being sued for not treating pain appropriately and aggressively enough. You can bet if they are hurting, they will be treated, pulling out all of the stops, until their pain is under control. Sometimes I am embarassed to be associated with the medical profession. But here again, it goes back to being your own advocate. I tell them I want to discuss options, not just be "told" my options. They won't treat my family that way either. I will become their worst nightmare.......sorry for the rant!!
Need not 'apologize' for the 'rant' I get very worked up about this issue also! And don't be 'embarrassed' by being associated with the medical profession! My hope is that MORE medical professionals such as yourself will be able to help get some changes made regarding what i truly believe to be 'discrimination'...
Sounds like Bob's pain clinic is the same as mine.....run by Anesthesiologist know-it-all 'Needle Jockies' who go against the VERY profession they are supposed to be HELPING!! Because they'd rather shove a 4-inch needle in a person's spine for the cost of half of Jay Leno's car collection as opposed to prescribing a PILL from an opiate plant that can be taken on an as-needed basis.....
I WAS TOLD I WOULD END UP IN REHAB IF I DIDN'T AGREE TO GET A $150,000
IMPLANT PUT IN MY SPINE TO CONTROL PAIN
GrrrrrrrRRRRR!

........... ...... my apologies to Jay Leno. I have nothing against your car collection dude.
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Old 08-28-2010, 11:13 AM #9
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Quote:
Originally Posted by kpRN View Post
After reading Bob's description of the pain clinic at JH, my blood is once again boiling. Being a health professional we were taught that the patient's pain IS what THEY say it is. People react differently to pain. I have had patients cry, laugh, talk a mile a minute, sleep and a whole host of other behaviors because they were in pain. Does it mean if you laugh, you can't be in pain? Shame on those folks at JH pain clinic for treating ANY patient in that manner. We also learned that people who are addicted to pain medication require higher doses of meds to treat their pain, you just don't tell them to suck it up and get on with their life. Dang it, that makes me mad. It is no wonder physicians are being sued for not treating pain appropriately and aggressively enough. You can bet if they are hurting, they will be treated, pulling out all of the stops, until their pain is under control. Sometimes I am embarassed to be associated with the medical profession. But here again, it goes back to being your own advocate. I tell them I want to discuss options, not just be "told" my options. They won't treat my family that way either. I will become their worst nightmare.......sorry for the rant!!
One thing my dad thought me was to be your own advocate or have one when you deal with the medical profession. I was in a car accident when I was 17 and one of my docs, plastic surgeon, was planning to wire my jaw shut, I had broken it in the left TMJ joint. My parents insisted, to the neurosurgeon in charge of my treatment, that a jaw specialist be brought in. I remember my dad firing the plastic surgeon after that. He was a very effective advocate for my mom when she had cancer also. Most people don't think they can fire a doctor.
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Old 08-28-2010, 02:36 PM #10
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i went to a pain clinic here for steroid shots to cervical spine, ( big mistake pn pain wise), and they wanted me to agree to have anything i take for pain, only amitriptylene in my case, anyway to have it go through this one pharmacy with their approval and i wasnt even looking for or getting any narcotics off of the pain center. i fired them.
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