Hi - I also have this deep, bone, crushing pain. It feels as though the bones in my arms have been crushed and then the shards are continuing to be rubbed together - it is excruciating. I have an inflamation of the nerve base right off the spine (ganglioneuritis is one term for it). Or another desription is that there is a cable running throughthe middle of the bones in my arms and they are being pulled inside out. The problem is - there is NOTHING to be done for it. For me at least. Have you found anything that helps you? Are you seeing a neuro for this? Is it a newer symptom?

Hi I am back on the Forum again for the first time in 7 years. My life has changed much since the last time I posted. Too much to put into one post. But we can talk about that another time. My question is does anyone else suffer from this type of Deep crushing bone pain? What is thought to cause it? And what is done for it? Please any feedback at all would be helpful as I still have not been able to solve this problem. I am on a large amount of painkillers and absolutely detest it! Thank you and I've been thinking of you all for years. I hope those of you that I have communicated with in the past are doing well I would love to hear from any of you.

even though my feet are dead numb and i can walk around with a tack in my foot and not feel it, i still have broken bone type deep pain when i stand or walk. is that what you are talking about?

Yes. Yours sounds like pain I deal with. Mine is in both of my arms and sometimes shoulders. It hard to describe to people who have never felt this way. It feels as though my arms are being crushed between two enormous boulders with gouges of splintered bone ransacking this insides of my arms. Its a constant crushing pain with intermittent stabbing. This occurs when at rest and active. But activity exacerbates the pain 100 percent. Is this in any way simular to your pain? My arms also become terribly tired and weak as though I had been working out to point of pain and kept going with no recovery time. I do not have the strength to tear toilet paper or press the remote buttons.

Also somewhat feels like the pain you experience when smash your thumb with a hammer or your finger in a car door. You know the pain right? It's the secondary pain that's a lot worse an instant after the first pain you feel when these events first happen. I hope this gets out there to somebody who can commiserate and assist. Warmth helps lightly. I have an herbal oil from China I use and it's also helps somewhat. But the thing that really gets me through the 8 months of pain levels 7 to 11 out ten is the pain medication diluadid. But I need to reduce this med as it is having a severe negative impact on my body.