Getting ready to take this SFSN thing by the horns on Tuesday when seeing the neuros.

Not wanting to sound defeatist but only trying to be realistic, according to the LizaJane chart on PN testing, there is still some bloodwork that was never done in trying to discover a cause for my non-length dependent SFSN. In all honesty, I want the rest of it to be ordered. That way, if all of those are negative just as ever other bit of lab work has been except for thyroid, I'll at least feel, when the word "idiopathic" is eventually tossed out, that I'll be able to better deal with it emotionally.

So my question is - what would you do in this position? Am too old for some types of treatment, and as I've said probably umpteen times before, just cannot do the Big Pharma oral meds that are so often Rx'd. I do supplements as recommended in the sticky and research I've done about them.

But if a cause WAS found for which relatively mild treatment would help, that would be a totally different ballgame.

Best wishes to all, and very sorry for your pain.

Sheltiemom