NeuroTalk Support Groups - New here :)...my story

Welcome! Although I currently don't have any advice for you, I will say that you found a great place for information and support. There's a wealth of information here and a tremendous number of folks that can relate to the discomfort of PN. Best of luck to all of us!:grouphug:

Quote:

Originally Posted by GypsyQueen (Post 697864)

So I have been having problems for years. Only now can I look back and see it.

So right after my daughter was born 6/09 I noticed my left foot was very numb to the touch. My FNP got me in for a MRI right away...after it was done and she got the results she said that she was afraid I had MS but it showed I didnt and wanted me to see a neurologist. I went and she looked at the MRI and did a couple of in office tests said I had neuropathy and sent me on my way. No other tests, no follow up, etc. I didnt think it was a huge issue because there was nothing more and I didnt have my laptop at the time to look it up.
I got pregnant again shortly after (accidently) and during the pregnancy and right after her birth I noticed more numb areas and I had been in a lot of pain since my 4th month of pregnancy. During this pregnancy I moved to a new town. I still complained of the pain but I could only take tylenol 3. Sometimes it helped and others it didnt....but never did the pain go away it would just get bareable sometimes. After my second daughter was born I found a new dr in town.
He started with a CBC and refered me to a Neurologist in Tempe, AZ. The CBC came back that I was clear on diabetes (runs in the family) but there was one count that was elevated so he had me go in for more blood work and said he was checking for Gout, Lupus, RA. I will find out the results on Friday when I see him next. My trip the the Neuro was basic. I told him about the MRI and what was going on. He did some in office tests which I failed horribly. One of the test was if I could touch my nose with my eyes closed....it was really bad. He scheduled a EMG and I had that done yesterday. Thats when he told me that it was in fact Peripheral Neuropathy. I could not go on the medication because I am breast feeding. I have a follow up in 6 weeks and I will have the baby on a bottle by then. I started weaning her today and she took well to the bottle even though she did not have bottles at all. I am sick of hurting all the time. It hurts to get down and play with my older daughter. It hurts when I hold the baby. It hurts when I wake up.....takes me almost 3 hours just to be able to get around. I now know why I fall all the time...so therefore I do not carry my little ones. If I walk a couple of blocks it takes me 2 days to recover. At least I know why now though.

I am so glad to find this forum. Everyone here knows what I am going through. I just feel like I am whining all the time these days and noone really understands. My husband is really supportive but he thinks I can just push myself to do more walking and it will get better but how can I if I hurt so bad for days afterwards? So for now I am just taking it day by day until I see him again.