advertisement
Reply
 
Thread Tools Display Modes
Old 09-28-2010, 12:32 AM #1
GypsyQueen GypsyQueen is offline
Junior Member
 
Join Date: Sep 2010
Posts: 17
10 yr Member
GypsyQueen GypsyQueen is offline
Junior Member
 
Join Date: Sep 2010
Posts: 17
10 yr Member
Default how important

is it to get into the rheumatologist right away. The dr that the referal is for is not taking new patients until the first of the year. Should I try and find a different one and ask my dr for a referal to him/her?
__________________

.
GypsyQueen is offline   Reply With QuoteReply With Quote

advertisement
Old 09-28-2010, 02:09 PM #2
cyclelops's Avatar
cyclelops cyclelops is offline
Magnate
 
Join Date: May 2007
Posts: 2,049
15 yr Member
cyclelops cyclelops is offline
Magnate
cyclelops's Avatar
 
Join Date: May 2007
Posts: 2,049
15 yr Member
Default

Honestly, my neuro is way more important to me than my rheumatologist. Rheumatology seems to me a very confused specialty. I have found with most rheumies, unless you display the specific antibody patterns in your blood, they seem disinterested in treating. What I mean is, if your ANA is positive, even highly positive and your ENA (specific for Lupus, RA, Sjogren's, Poly/Dermatomyositis, Mixed Connective Tissue Disease, etc. are negative, they may have nothing to offer. I guess it depends on the clinic, but I have seen several, including a few who drew NO blood and dismissed me with Fibro.

My neuro diagnosed me with Sjogren's and I have yet to find a rheumie who concurred or had ANY ounce of interest in my case. I am still unconvinced that I have Sjogren's altho, other than the specific antibody, I have a classic case. But without more interest in finding the actual antibody, or, any other cause, this is it.

What I am saying is make the appointment....but don't necessarily put all your eggs in that basket. I hope for your sake that you get that gem of a rheumie that wants to look beyond the obvious. (If you do want IVIG, likely the neuro will have more luck with that than the rheumie.)
__________________
Some days are not so good
.

.


Others not so bad:
.
cyclelops is offline   Reply With QuoteReply With Quote
Old 09-29-2010, 05:31 AM #3
daniella daniella is offline
Magnate
 
Join Date: May 2007
Posts: 2,998
15 yr Member
daniella daniella is offline
Magnate
 
Join Date: May 2007
Posts: 2,998
15 yr Member
Default

What I would do if you can finanically is make an apt with another one so you could start testing and then you could see the suggested at a later time. Before I even went to the rheumatologist my neurologist ran a lot of initial auto immune testing too. So that could be an option possibly because if something does show then maybe the neuro can get you in or you would want to see someone else sooner.
daniella is offline   Reply With QuoteReply With Quote
Reply


Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off


Similar Threads
Thread Thread Starter Forum Replies Last Post
I just learned something important. Erin524 The Stumble Inn 8 04-18-2009 09:54 AM
OT but vitally important to us all reverett123 Parkinson's Disease 4 07-15-2008 01:57 PM
OT - But Important Todd Parkinson's Disease 9 06-29-2007 08:29 PM
Important question. I've been looking everywhere LucyQueenofPain Social Security Disability 7 02-12-2007 04:11 PM


All times are GMT -5. The time now is 04:58 AM.

Powered by vBulletin • Copyright ©2000 - 2024, Jelsoft Enterprises Ltd.

vBulletin Optimisation provided by vB Optimise v2.7.1 (Lite) - vBulletin Mods & Addons Copyright © 2024 DragonByte Technologies Ltd.
 

NeuroTalk Forums

Helping support those with neurological and related conditions.

 

The material on this site is for informational purposes only,
and is not a substitute for medical advice, diagnosis or treatment
provided by a qualified health care provider.


Always consult your doctor before trying anything you read here.