I have been in USA since 1992 and my symptoms started in 1996 when in high school with burnig years and elbow which lasted couple of months and disappeared. Never had it checked out. Then again it started in my nexk in 1998 suddenly and spread to arms and throat. Burning strange sensations I couldn't explain. I xouldnt touch metal cause it would make it worse and as years went on and two pregnancies later here I am with it. It spread all over fairly quickly and worsened after flu shot in 2003.

Vitamin says methylcoblamim 5000 mug (5mg)
Folic acid ( 400mcg)
By merit pharmaceutical

Other one is
B 6 (as pyridoxal-5-phosphate) 20 mg
Super dimutase ( from vegetable culture) 20 mcg
Catalase (from vegetable culture) 20 mcg
That's from biotics research corporation

Other is
Calcium(as calcium gluconate) 18 mg
Magnesium ( magnesium gluconate) 5mg
Potassium ( potassium chloride) 52 mg
3 times a day one pill

That's all he gave me.

Not exposed to anything other than house cleaners


Eat all kinds of meat except pork
Hardly eat fish

I think my h1ac is borderline at 5.6

I hardly eat fish. Not a vegan

Came to USA in 92 and this started in 96 when in high school. It was with burning on both whole outside of ears and then left elbow.
I am thinking vaccines or the fact I always had allergies or upper resp stuff and took antibiotics.

Never took any recreational drugs my whole life or smoked or drank alcohol.

If you do not consume essential fatty acids, your body cannot repair itself.

Here is my EFA thread:
http://neurotalk.psychcentral.com/thread6092.html

Flax oil, and fish oil (or the fish themselves) are necessary for normal skin/nerves. Too much Omega -6 oils like sunflower, safflower, peanut etc, and you become inflamed, and allergic.

The two types must be balanced for health.

Red ears often show up in children with food sensitivities.
If I were you I'd look to something you eat often and also crave.
That can be the culprit. Start a careful elimination of suspects.
This will take time. For example, I found potatoes a trigger for myself! I didn't suspect it for most of my life! I know your doctor thinks that gluten tests are negative, but if you read the gluten board here you'll find people who had negative testing and still improved by going gluten free. The tests do not target everyone consistently.

If you were on alot of antibiotics, one family, called the fluroquinolones is a known causer of PN. (Cipro, Levaquin, Avelox). There is no proven treatment this damage either. Check my thread in the subforum for comments on this drug induced nerve damage.

The B12 needs to be taken on an empty stomach. If you take it with food, it may not be absorbed properly. That dose used daily correctly should raise your B12 levels over 1000 within 6mos, or sooner.

The calcium/magnesium/potassium doses are minute and not likely to help with anything.

Oh so why would he give me such low dose of calcium/ magnesium.

Plus do I need to work with some kind of practioner to Do elimination diet.

I crave sweets to much and salt!!
Eat bad! I did the detox of eating only veggies and apples and berries. Mostly raw veggies and I had no difference so I know that's not enough time to see a difference.

Thankyou so much for all the info.
I am waitin for my skin biopsy result to come back.
Might be till November. He only took one spot is that normal?

Tulips

I have no idea.... probably to make $$ for himself???
RDA for magnesium is 350mg a day
RDA for potassium 4500mg a day
RDA for calcium for adults is 1200mg a day (maybe less if you use high dose Vit D3.

Basically it just cost you $$ and provided very little.

The B12 tablet you should only need one a day of that taken correctly on an empty stomach.

The other, I have no clue what it is for or if it is valid.
"doctors" who sell you stuff...you have to be careful...they are out to make money basically.

Thank you mrs D. I think I will go down to vitamin store and get better mg magnesium
And calcium.

My mothernlw wants me to take goji and acai Berry juice and I want to run it by you guys.

Is 600 mg alpha lipoic safe?

Thank you

I was foong thru my doc notes and he states idiopathic neuropathy, tremor disorder, and possible hyperexcitability nerve disorder.

Cause my crampsare and just as prevalent as neuropathy symptoms.

This sounds to me--
 

--given the systemic presentation, as if there may be a hereditary component, and if not, then some sort of toxic exposure or autoimmune process.

It sounds like you need a LOT more testing--do you have access to a large teaching hospital, or are you relatively close to a specialty center (such as Cornell Weill in NY, the University of California at San Francisco, the Jack Miller Center in Chicago, Massachusetts General in Boston, Washington University in St. Louis Missouri, or Johns Hopkins in Baltimore)? Could your doctor refer you to such a place? (It sounds as if your current doctor is limited in understanding of neurological disorders--just doing the SPEP without doing an immunofixation electrophoresis to determine type of immunglobulins, not just quantitiative levels, for instance . . .)

I certainly support trying to as much nutrionally as possible, but I suspect that you may have an active disease process that needs to be addressed as well, and I recommend looking at the Liza Jane spreadsheets for the purpose of suggesting avenues for testing and tracking results over time:

www.lizajane.org

Hi

I have been seen at the utsouthwestern by a neuromuscular doctor and he did emg/ncv and didnblood work for vitamin d and wilsons disease and has dismissed This as neuromuscular and said he has no clue!!

The spep was pretty detail with the urine too.I have the report and it has all that you are talking about.

I have had so many test and some special ones. I will look at that list but don't have insurance right now so will have to wait and see.

I am waiting for my skin biopsy results. I am seeing a different neuromuscular specialist and he is with Baylor. He is good and docent mind runnin whatever test.