I have Tinnitus. It is the worst thing I could ever imagine happening to me in my retirement. I am sobbing as I write this....My wife doesn't understand....like I should expect her too. I was just sitting in my chair one morning, and the "t" sound began....I wouldn't wish this on my worst enemy.

Does Tinnitus connected to neuropathy? Is there any thing to do about it?

I didn't know what tinnitus was, so I looked it up. It says it is not a disease, but a symptom. I am not sure if this is where you meant to post or not--this is the board for peripheral neuropathy. Is the tinnitus a side effect/symptom of neuropathy or the medications for neuropathy?

Regardless of if this is the right place to post or not, I truly sympathize with you. While I don't have that specific symptom, I do understand how one symptom can take over your life and change everything. For me, one symptom has taken me from a mostly healthy 24 year old college student to someone who is stuck in bed 24/7 with no end (of being bedridden) in sight. One thing can change so much...

It is really hard for those people around us to understand, when they haven't experienced it themselves. Even people have have tinnitus may not be able to fully understand, as they may have a less severe or more severe case than you do. It's hard--nobody on this earth can truly understand, as your symptoms are specific to your individual circumstances--your life.

Have you seen a doctor about this? If not, I would suggest that you do so.

There are a lot of things you can do (in terms of medicine, and eliminating stressors in your life, such as caffeine, loud noises, etc) that can help reduce your symptoms. If you haven't already, I would recommend that you do some searches and see what you can find out about tinnitus and what can be done to treat it. There are many options. Nothing may make it completely go away (though there is a possibility that it could totally disappear), but in most cases, there should be several things that may reduce the symptoms and make it a little easier to live with.

Contrary to how you may feel, your life is not over. You are still a capable, funtioning human being. I understand the annoyance of the symptom... I understand you hate it, and that you feel that it is taking over your life. But, you can do things to treat it... and it will not control your life unless you just "give up" and let it. You can do research and find ways to make it better... and try every option you can find. By the little research I have done, it seems as if it would take years to get to that point, where you have tried every single thing and nothing has worked... and if that is the case, it may just be something that you have to try to live with until more research is done and more options have found.

Do research, get to know ways to make things better, and try anything you are able to to see if your symptoms ease up. Don't give up--no matter how you feel, your life is not over. You are still alive--and that is something to be thankful for.

It may seem like life is over and everything is hopeless, but I can assure you that that is not the case. Keep fighting and trying new things... don't give up and let this symptom "win".

There are a lot of wonderful people on this website that are dealing with all sorts of problems. We are all here to help support you in whatever way we can. If you need any help finding information or doctors in your area, just let us know.

Take care, and know that this is not the end of your life--things will get better someday.

I am really sorry to know you suffer from tinnitus. Sarah Mae is right in her advice. I have SFN and the autonomic part of the neuropathy - it is the worse for me, much more so than the sensory and weakness part... I do have tinnitus when I am having a bad flare. My neurologist says it is part of the SFN in an autonomic (or dysautonomic) sense... When I have a flare it is not the worse of my symptoms. I would say that the fluctuating heart rate, BP, fatigue, gastroparesis and lightheadedness is the worse... but the tinnitus is there and it is definitely unpleasant. I do have it all of the time to some degree but during the flares it becomes worse.

Any one else suffer from this?

Hi. I am so sorry you are going through this. I too just read a little on it. Have you had dx testing to see where this may be coming from? They suggest tests like CT etc. Also it says that it may go away on its own. I know it is so hard and I wish I could do more to help. I can relate to how loved ones do not understand sometimes. If you want a email buddy I am here to listen along with others I am sure. I agree with everyone to call your doctor too.

I have tinnitus, and have dealt with it for years now. My head sounds like a field of cicadas/kadydids all the time, sometimes louder. After a time, I learned to deal with it..it doesn't keep me awake, and generally, it doesn't interfere in my everyday life other than often I do have to ask people to repeat what they say. Sometimes I have difficulty understanding what someone is saying to me on the phone too, I have to ask them to talk slower.

I saw an ENT doc, was tested for all sorts of hearing tests and such...very mild hearing loss, and no reason he could find for the tinnitus. For some, it just goes away as quickly as it comes on, for some, it's with you for life.

To be honest, there are much worse things we could deal with than tinnitus. Try not to concentrate on it. Do not fall for any of those fake cures out there, they don't work, and don't try to wear ear plugs as others have told me do wonders, all they do is make the noise louder.

First things first.....check the side effects of your meds, and the drug interactions.

I get this intermittently, it comes and goes.

I get it internittently, as well.
With me it is a high pitched whine similar to electronic feedback.
It becomes intense for short periods (minutes to hours) and then doesn't occur for long periods (weeks to months). It comes & goes. Don't know if it is PN or meds related.

Tinnitus on a regular basis must be really nasty, but as somebody posted here, she's been able to adjust and it doesn't interfere with the activities of daily living.

Please try to do as much as you can to alleviate this by avoiding whenever possible the things that aggravate it, and that includes stress.

When my small fiber neuropathy first started, had it several times a day, but only for seconds at a time. Now ten months later, it happens only rarely.

Maybe a doctor can help, if not with meds then with techiques you can use to try and distract from it as much as possible.

Please research tinnitus on-line, but remember there are always some exaggerated, baseless claims by those who want to make money by selling bogus "cures."

Good luck,

Sheltiemom

As quickly as it came on....I woke up this morning....gone! It's 11 at night, and still no high pitched sound. The only thing different today was the elimination of the standard morning "pot" of coffee...to 2 cups. I don't know if that was it or what. I don't know if the Lyrica or Tramadol are a cause. But, I can appreciate today's quiet. I pray on my hands and knees for anyone with this affliction! My PN doesn't hold a candle to a noise that is in your head, and you cannot turn it off. Thanks for all the support on this great forum.