More links:
 

This link has a further discussion of dorsal root damage:

http://neurotalk.psychcentral.com/sh...ht=dorsal+root

Sjogren's as a cause:
http://onlinelibrary.wiley.com/doi/1...00416/abstract

http://onlinelibrary.wiley.com/doi/1...70313/abstract

Paraneoplasia as a cause of dorsal root neuronopathies
http://www.medlink.com/medlinkcontent.asp

ex is idiopathy neuropathy and/or hypersensitive nerves endings
 

I was on the net looking for info on neuropathy when I found this site. Maybe someone here has some insights they can share with me.

One year ago I had what my primary doctor said was diabetic neuropathy in my feet. I have mild diabetes. It started with cold toes then advanced to stinging. He sent me to a neurologist for conformation. I had the nerve tests in the office which showed very mild degradation in the feet nerves. Within a month my forearms, face, neck, a hand started stinging. A short time later the shin around my eyes start stinging and the roof of my mouth. Then electric shocks to my tongue. Then it progressed to my trunk and testicles. In several instances the sting was preferred for days with a chill sensation before the stinging started.

My neurologist was stumped because the skin biopsy was normal though he said the skin site chosen could have been poor. He sent me to the Mayo Clinic they diagnosed hypersensitivity of the nerve endings but could not say why. My local neurologist said this was a description of the symptoms not a Dx.

Essentially I have stinging in most, almost my entire body when not on meds. I am almost pain free on the meds which include Lyrica, Cymbalta, and Oxycontin.

By accident I ran across an abstract on non-length dependent PN. It described my symptoms in a general way. I have been unable to find any indepth info on the non-length dependent PN. Then I found this site.

If anyone can point me to info on this decease I would be grateful. Any insights or personal experiences would also be appreciated. Why my neurologist never mentioned this decease is troubling. Thanks for any help.

A lot of doctors--
 

--even a lot of neurologists, are unfamiliar with neuropathy that presents body-wide, or acutely, or beyond that standard "stocking and glove" distribution.

It is possible you have diabetes/impaired glucose tolerance contributing to your symptoms on some level, but yes, the anatomical distribution does not sound typical of diabetic neuropathy, so there may be another factor at work here--possibly autoimmune, toxic or medication induced (what meds are you currently taking, or taking when this showed up?). Nutritional deficiencies and infectious causes are also possibilities.

Take a look at:

http://neuromuscular.wustl.edu/time/...htm#neuropathy

http://neuromuscular.wustl.edu/nanatomy/proxsens.html

http://neuromuscular.wustl.edu/antib...n.html#sjogren

Glenntaj
 

Thank you for your response. (I just read my original post. I had a bunch of misspellings.)

Before the neuropathy started I was on metformin, januvia, baby aspirin and lisinaphril. My A1c has hovered around 7.0. Mild diabetes and some hypertension. That' all.

My docs have tested for EVERYTHING they could think of. I was tested for heavy metals, toxins, blood disorders of all kinds. I don't drink except on special occasions. The only abnormality they found ( other than diabetes) was low-normal B12. I have been getting B12 injections every two weeks since then and take metanx twice daily.

My neurologist has gotten the pain under control after six months of near debilitating pain. He seems satisfied. I am not. Until I know what the cause is, there is the threat that it is progressive. My sentiment is that you have to know the cause in order to treat the problem. Treating only the pain symptom is not my idea of acceptable treatment. ( maybe I expect too much, given the state of knowledge on neuropathy)

Is there any sites that deal specifically with non length dependent neuropathy? I am looking for something that gives symptoms, progression, etc.

Thanks again