[Tulips]

Hi

I happend to call the lab my sample was sent to, so I can ask if there is a problem as to why my doc only did biopsy on my ankle an not thigh.

Turns out my results are negative and also for amyloid.
He aske if I have spoken to my doc and I said no so he was like oh well you need to talk to them. He thought I already had results. In any case case he said there was no evidence of sfn.
And it depends on what doctor thinks and why he didn't do thigh but he said in your case you didn't need it.

So back to square one!!!


Does this mean I have the symptoms but no damage and nerves are okay. Or am I loosing my mind!!

[mrsD]

The news means that you are in the statistical norm or normal.

The cause of your symptoms is not found yet by their standards.

Since you know you have allergies, and eczema, I'd follow that path. A good allergist, or environmental doctor may nail down your culprit.

No damage yet is a good sign. I'd look to your lifestyle critically, and keep a log of all jewelry (nickel allergy), all makeup, food you eat , anything that you consume. Your soaps, pets, etc. Even toxic black mold in any damp area. Chemicals from wells (if you have well water), or exterminators, flea control, pesticides in the yard/lawn, etc.

I'd look into food allergies seriously.

[Tulips]

The lab person asked me where my symptoms are and said all over even my face. So he said ya no it would be legs and hands or arms for sfn.

I have read so many people have facial symptoms with sfn so this is confusing

I am going to read what the report actually says

Tulips

[Tulips]

Thankyou mrs d

I have moved so many times that I cant pinpoint one place. No water well.
Don't wear jewelry and use makeup like once a year! But let's see

I have seen an allergist before and he did a test with some punch thing and that was normal.
I am going to look for another allergist/ immunologist
Could still be malabsorbtion issue or celiac type or rhumatology.
Lab person said since no sfn or emg clean this could be CNS involved but my MRI is normal and so is EEG.

Tulips
Thankyou

[Tulips]

Does it matter which leg they do. Should they have done the one that has the worse symptoms?

[mrsD]

I really don't know.

Maybe Glenntaj would have some comment since he has had the test more than once.

[Sheltiemom18]

Don't want to throw cold water here, but non-length dependent small fiber neuropathy definitely can affect the face. It did mine.

My above the ankle biopsy site showed not much evidence of SFN. Lower thigh showed more and high thigh showed most.

But if your docs don't think you needed the higher sites biopsied because above the ankle showed no evidence of SFN, then it's up to you whether or not you want to go with that or ask to have the other two sites done.

Sheltiemom

[Tulips]

See this makes me mad. Why not do all three spots in the first place. I had to beg him for this biopsy so maybe he just did it to shut me up and was lazy to do one spot. Every person I read had more then one spot done.

Now I don't have insurance. That was last test on it so this just sucks.

Sheltiemom you had it in face. Was it just as bad burn ing and all?

[Sheltiemom18]

Tulips,

Sorry to say this, but the face has always been the worst. It's and everything else affected has gotten significantly better, though, during the last two or so months and especially the last few weeks. Take no meds, but do take supplements as recommended here at this very forum by MrsD and others.

It is really too bad that was your last test with insurance. But look at it this way - you had NO evidence of SFN by ankle biopsy. That's good news!

Sheltiemom

[Tulips]

Thankyou

But leaves me to wounder what thigh would have shown. I needed more testing but can't now.
So will work on diet and vitamins