[jurgen975]

How does a doctor come to the conclusion that his patient has a alcohol neuropathie.
Is it because the patient has deficiencies like a b12 deficiency or a b1 deficiency
Or does a doctor review a history of alcohol abuse.

I have a axional idiopathic small fiber neuropathie in the past i used to drink a 4 bottles of beers every weekend,and even before i got this problem i was cutting down on the beer consumption to 2 or 3 bottles.

The only thing with the few tests that have been done till now is that my liver at the beginning of this problem had a gamma gt of 52 after 6 mounths it was 84 and a couple of weeks ago it was 70.

My neuro didnt think it was a alcohol neuropathie,the second neuro i visited also didnt think it was a alcohol neuropathie.But they never tolt me anything about how the constrains of a alcohol neuropathie.So i am asking everyone how is reading this,to give me there opinion.


I use on a daily basis 6400 mg alpha lipioc acid&acetyl L-Carnitine+400 mg Q10,
visoil,sometimes benfothiamine or 5000mg b12
None of these supplements above have any effect its still getting worse

[malawigirl08]

I would say you would need to drink an awful lot more than that to damage yourself, in the UK safe limits are 14 units for females and 21 for males per week so you are way under that, government guidelines also stress that these units should be spread throughout the week.

[mrsD]

Beer can be a certain trigger for those with gluten intolerance!

[jurgen975]

I did a blood test for gluten intolerance it came back negative,i didnt do the oral gluten intolerance gluten test which is recommanded.The search continues

Originally Posted by mrsD

Beer can be a certain trigger for those with gluten intolerance!

[mrsD]

Some people find that the blood work may come back "negative", and doing the stool test reveals more.

You can check with our Gluten forum here for more details.

Gluten intolerance is somewhat different from true Celiac, and for this reason the testing may give false negatives.

You could easily test for this yourself...give up beer completely for a while and see if your symptoms improve any.

[darlindeb25]

I did a blood test for gluten intolerance it came back negative,i didnt do the oral gluten intolerance gluten test which is recommanded

Many a celiac has been given a false negative result. Mrs. D is also correct in stating that a gluten intolerance may not show up on blood work.

My dad was told by doctors to try gluten free and see how he feels...then they tested him later and told him he didn't have a problem with gluten, so he went back to eating it. OF course, both of his daughters are celiac (my sis and I) and he still went back to gluten. A year or so later, with his health getting worse and worse, and his weight down to 130#, the doctors did a celiac test again, and it came back positive. He was celiac all along, they just didn't know what they were doing. He has been gluten free for 6 yrs next month, and doing better, although lots of damage had already been done by then.

Try going gluten free for even 2 months and see how you feel. I have been gf for over 10 yrs.

[jurgen975]

Originally Posted by mrsD

Some people find that the blood work may come back "negative", and doing the stool test reveals more.

You can check with our Gluten forum here for more details.

Gluten intolerance is somewhat different from true Celiac, and for this reason the testing may give false negatives.

You could easily test for this yourself...give up beer completely for a while and see if your symptoms improve any.

I am beer and alcohol free for a year now, i thought of trying to do a gluten free dieet for a mouth 3 but still haven't make a start with it.I have checked the symptom list ,i dont recognize anything.I general i feel good except of this problem.
However do remember some a very strange symptomes in the summer of 2008 before i got this problem,symptomes like nauseous,dizzines or vertigo coming and going for periods of weeks that my doctor related to my low blood pressure but with a check up nothing was wrong with my blood pressure

[mrsD]

Please ask this question at our Gluten forum.

Cara (jccgf) is very experienced with this and has a website with enormous amounts of information.

There are studies and people she has known who have gluten intolerance with few GI symptoms, and negative blood work.

http://neurotalk.psychcentral.com/forum13.html

If you have been off all alcohol for a year, I'd not suspect it anymore. But chronic PNs that do not respond to treatments, may end up as gluten induced( from diet).

Doctors LOVE to pin everything on an obvious diagnosis. They may then ignore anything else you offer or suggest, even symptoms. (sad but true). Just Google "wrong diagnosis statistics"! Some doctors even think PN symptoms are all in your "head"... psychogenic! If you are female this is more common, but it exists too.

If you cannot get the help you need from your doctor, and feel stuck, then you can surely do some things for yourself, starting with a gluten free diet.