Originally Posted by Rrae (Post 708298)

Here is the link to the SCS/Pain Pump Forum here at NT
(it is listed as a sub-forum under the "Medications/Treatments" forurm)



It is very active and full of information and people's experiences.
The 'stickies' at the top contain FAQ's and some very impressive links to sites that explain these units very well.

I've had mine for 9 months and it takes away about 75% of the horrible burning neuropathy in both legs

Caring
Rae

Originally Posted by Hermes (Post 708474)

A friend of my father had it for PN in hist legs. I talked to him and he was feeling great as it worked well. I was looking into it but it doesn't work for non-length dependent neuropathy.

Originally Posted by godiva3ft (Post 709602)

I went to physical therapy for some time and my doctor -- a physical medicine specialist -- finally ordered a Neuro-Muscular Electrical Stimulation (NMES) unit for home use. It works to re-educate the muscles and make new connections between brain and body parts. If it's not possible to make new connections due to extensive lesions, then it keeps your muscles toned. It does help with pain as well.

I have recently had a reversal of long-standing numbness in my feet and connect that to taking Olive Leaf Extract. At first, it sounded silly to me but some of the information on this supplement is amazing. I would guess your response would depend on the level of your disease activity and progression.

Olive Leaf Extract has improved MS-like symptoms (EAE) in mice according to an article entitled: "Dry olive leaf extract ameliorates experimental autoimmune encephalomyelitis" I was unable to post the link since I haven't been on the forums long enough.

Another great article describing the many benefits of OLE is on Wikipedia.

Originally Posted by kokorogrl (Post 707827)

I've had PN for over a year now. Done all the testing and we can not find the cause. Tried the medications and for one reason or another they weren't good for me. Topamax did help a little bit and I liked it but after about 6 months my hair started to fall out so we had to dc it.

I finally got in to see a pain specialist yesterday who wants to try me on a Medtronic Neurostimulator. I've done some research on it and can't seem to find people using it for PN. Has anyone here heard of it being used for that? Has anyone tried it?

Thanks, Koko