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Old 10-24-2010, 09:05 AM #1
Bugaboo Bugaboo is offline
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Join Date: Oct 2010
Posts: 2
10 yr Member
Bugaboo Bugaboo is offline
New Member
 
Join Date: Oct 2010
Posts: 2
10 yr Member
Default This one goes mostly out to Ms D

Hi,

The short story of how I got PN. I was on a drug cocktail which included Cipro then Tequin (many months of it) for late stage Lyme disease. It was a bad comedy of errors but in the end, the doctor thought my lyme disease was getting worse & causing PN so they gave me more cipro which cause more PN, which caused them to give me more drugs, etc. Only when I went off all drugs fr a few weeks, then had a UTI and given levaquin, did I find out that I was having Fluoroquinolone ADRs all along. Now 8 years later (though much better), I still have full body tendon damage, PN and dry eye, nose, mouth problems.

I went to Cornell- Weil in the city. And although the doctor understood my situation, there was not much to be done but take pain meds.

Since drugs caused my problem, I tried to go without drugs to cure the pain. But after so many years of suffereing, I wanted a better quality of life. I am now on Lyrica 150mg a day and tramadol as needed. I have not given up on healing and would like to know what I can do nutritionally to help myself. I am limited as far as suppliments go because I have a very sensitive bladder and can't tollerate a lot of vitamins. I am also limited to medications because of my dryness problems. I have to try suppliments/meds one at a time to see if I can tollerate it.

I currently take fish oils as well as vit D3 7 iron as I am low.

I know MS D has talked a lot about neurotoxic drugs and Mitochondrial damage so I thought perhaps her and others would have some insight.

Thanks all for your time.
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