I must say, even though I am very frustrated and depressed at times, I am trying to recognize the gratitude in not having MS or PD. I was given a Spinal Tap and 3 MRI's and Dr. confirmed I did not have MS. I also had a PET-SCAN for Parkinsons's which turned out Normal.

Just wanted to share my gratitude, this is by no means a "walk in the Park", but it could be worse.........

Always true, it could always be worse, although, that which we go through now, is enough for us to deal with. There are days I am down, and I will say, "How much does one person have to deal with?" Then I kick myself and remember, it could always be worse!

Sure things could be worse, but it's also true that dealing every day with something that has so changed the life we're used to living is daunting. So it's perfectly normal to feel and/or depressed from time to time. I think we at this forum all recognize this and are hopefully supportive when somebody is not having such a great time coping.

Best wishes,

Sheltiemom

Yes, it could be worse. However, the person down the block is dealing with whatever they have and I am dealing with what I have. It is perfectly fine to grieve for whatever is lost. I do try not to dwell on it as whatever happens, happens.

It just keeps progressing in my case as it does. So I never say that it could be worse. Because in all probability it will be. But, I do not know how I will end up. Non of us CMTers do know and not even a neurologist can tell us. I will have to deal with it just like the person down the block has to deal with whatever they have.

Please don't misunderstand me, this is a tough one. I could cry everyday, if I let myself, it is like having a new body. It is hard to make a peace with this new body. I think back at the body I had just 2 years ago that did not have these feelings and took it for granted. Now, inbetween each sensation/pain......sometimes I can go 60 seconds on a good day, I get a taste of the old me. It makes me look at life so differently. Never take anything for granted........it can be gone in a heartbeat!

It is hard to make peace with a body that hurts 24/7. Anyhow I am glad those tests came out ok. Hopefully things will look up soon. When people ask me how I am I sometimes say things good be better but things could be worse. I am supersticious.Just try to face each day as it comes and do the best I can. Feel better all

Sorry if you thought that I misunderstood you. I'm just saying how things pertain to me. Again, I'm sorry if I offended you.

Actually, the gist of it is from an article I read a few years ago pertaining to grieving. It just meant that a person has a right to grieve for their loss just as the person down the block does. And grieving, in one stage or the other, is constantly going on as we lose something else that we used to be able to do because of a disease. I live with pain every day. Some days are better than others. But I do have pain every day. So far I can tolerate it but that doesn't mean that it will not get worse. In all probability it will.

I agree that we should never take anything for granted as it can be gone in a heartbeat. So true and thank you for posting that. Take care.

fOR THOSE WHO HAVE NOT RZEAD MY STORY. I GOT MY PN FROM ZOCOR
12 YEARS AGO. FOR MONTHS MY PAIN EACH DAY 24 HOURS WAS 10-15.
JESUS AND A GOOD FRIEND KEPT ME FROM KILLING MYSELF. JESUS LED ME TO A AQUAINTENCE WHO TOLD ME ABOUT HIGH VOLTAGE TREATMENT.

AFTER 43 TREARS I COULD ONLY STAND 15 VOLTS. STARTED AT 4OO. I BOUGHT A TENS UNIT AND IT HELPED FOR A WHILE. THEN IT STARTED UP AGAIN. I WENT TO THE VA AND WE TRIED MOST EEVERYTHING TTHEY HAD AND NO HELP.THEY SAID MORPHINE. I STARTED 1 30MG. A DAY. AFTER SEVERAL MONTHS I WAS UP TO 8 A DAY BUT MY PAIN LEVEL KEPT DROPING.I TOOK 8 A DAY FOR FIVE YEARS.WITH MY PAIN MOSTLY AT 2-3.

I LOWERED MYSELF SLOWLY TO 2 A DAY AND THATS WHERE I AM TODAY.

THERE HAS ONLY EVER BEEN ONE HEALER IN THIS WORLD.


HIS NAME JESUS

My church believres in healing like myself . they are layiny hands on me 2 a week asking to heal me. I know he eill in his time here on earth or when he calls me home.

[QUOTE=george75;712203]fOR THOSE WHO HAVE NOT RZEAD MY STORY. I GOT MY PN FROM ZOCOR
12 YEARS AGO. FOR MONTHS MY PAIN EACH DAY 24 HOURS WAS 10-15.
JESUS AND A GOOD FRIEND KEPT ME FROM KILLING MYSELF. JESUS LED ME TO A AQUAINTENCE WHO TOLD ME ABOUT HIGH VOLTAGE TREATMENT.

AFTER 43 TREARS I COULD ONLY STAND 15 VOLTS. STARTED AT 4OO. I BOUGHT A TENS UNIT AND IT HELPED FOR A WHILE. THEN IT STARTED UP AGAIN. I WENT TO THE VA AND WE TRIED MOST EEVERYTHING TTHEY HAD AND NO HELP.THEY SAID MORPHINE. I STARTED 1 30MG. A DAY. AFTER SEVERAL MONTHS I WAS UP TO 8 A DAY BUT MY PAIN LEVEL KEPT DROPING.I TOOK 8 A DAY FOR FIVE YEARS.WITH MY PAIN MOSTLY AT 2-3.

I LOWERED MYSELF SLOWLY TO 2 A DAY AND THATS WHERE I AM TODAY.

THERE HAS ONLY EVER BEEN ONE HEALER IN THIS WORLD.


HIS NAME JESUS

My church believres in healing like myself . they are layiny hands on me 2 a week asking to heal me. I know he eill in his time here on earth or when he calls me home.

[QUOTE=Kitt;712024][COLOR="Navy"]Sorry if you thought that I misunderstood you. I'm just saying how things pertain to me. Again, I'm sorry if I offended you.

Actually, the gist of it is from an article I read a few years ago pertaining to grieving. It just meant that a person has a right to grieve for their loss just as the person down the block does. And grieving, in one stage or the other, is constantly going on as we lose something else that we used to be able to do because of a disease. I live with pain every day. Some days are better than others. But I do have pain every day. So far I can tolerate it but that doesn't mean that it will not get worse. In all probability it will.

I agree that we should never take anything for granted as it can be gone in a heartbeat. So true and thank you for posting that. Take care.
I will pray to Jesus to heal everyone in tis group. george 75

When I was writhering in pain the other night my wife said,, there are people worse off then you,, I told her I am not one of those other people, I am me, I hurt ,, as for laying on of the hands,, I need the whole crowd at a Steeler game to lay hands on me and maybe get some relief,,