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Old 11-08-2010, 11:56 AM #1
cadcon cadcon is offline
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Default Hi
I'm new at this.
I have some sort of Peripheral Neuropathy.
I am on 3600mg daily of Gabapentin, 600mg 3x daily.
I don't like to be touched becasue it burns me, except for my head and back. I don't like touching my self on my face and neck mostly.
I have had this condition for about three years now.
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Old 11-08-2010, 07:49 PM #2
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Welcome to the forum...lots of good info here.
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Deb

We urge all doctors to take time to listen to your patients.. don't "isolate" symptoms but look at the whole spectrum. If a patient tells you s/he feels as if s/he's falling apart and "nothing seems to be working properly", chances are s/he's right!
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Old 11-08-2010, 08:15 PM #3
invisable invisable is offline
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Default Welcome Aboard.......
Quote:
Originally Posted by darlindeb25 View Post
Welcome to the forum...lots of good info here.
I'm a Gabapentin Gal myself!

Working pretty well.........but don't like the weight gain!!!!

I didn't need any help gaining weight, I was doing all right on my own!
Last edited by invisable; 11-08-2010 at 08:16 PM. Reason: added words
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Old 11-09-2010, 07:11 AM #4
glenntaj glenntaj is offline
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Default Questions--
--you say you're on 3600mg/day of Neurontin, but 600 times 3 times a day is only 1800 . . .

And, what type of testing have you had? Did you keep copies of results and reports?
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Old 11-10-2010, 09:39 AM #5
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Hi. I can relate to not wanting to be touched. Actually I don't allow even doctors to touch my pain areas. It sends me into such a horrible flare up. I agree with others about what testing you have had and now what treatments are you doing? I hope you feel better
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Old 11-10-2010, 01:09 PM #6
Sheltiemom18 Sheltiemom18 is offline
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Hi,

You don't mention what type of doctor(s) you've seen. It sounds as if you might have small fiber neuropathy and/or allodynia, but that up to the docs to determine following a work-up. Neurologists are usually the go-to specialty for what you describe.

Sheltiemom
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