NeuroTalk Support Groups

NeuroTalk Support Groups (https://www.neurotalk.org/)
-   Peripheral Neuropathy (https://www.neurotalk.org/peripheral-neuropathy/)
-   -   Neuropathy Support Formula Effective? (https://www.neurotalk.org/peripheral-neuropathy/138278-neuropathy-support-formula-effective.html)

mrsD 12-18-2011 11:47 AM

Not yet.... Autoimmune damage typically hits the axons and then
there is inflammation of the cells because cytokines are signaled to come to the damage.

So antioxidants, are helpful.
Grapeseed Extract
Vit C (this has shown promise in preventing RSD after trauma)
Lipoic acid

These are examples of inflammatory suppressing supplements.
There are others too. Antioxidants also are in foods, green tea, yerba mate tea, and colorful foods like blueberries and strawberries, etc.

Today there was link posted to here:
http://www.jneurosci.org/content/31/28/10128.abstract

This is the mito thread:
http://neurotalk.psychcentral.com/thread80999.html

davidliew 04-09-2012 08:27 AM

Cipn
 
Quote:

Originally Posted by mrsD (Post 715972)
This one is quite new. And surprisingly is very strong. Typically I don't like mixtures, because they often have a ratio that is not really useful.

I would expect this to be very expensive. Was it? If not, then I would wonder if it contains what it says it does! You can send me a PM and tell me if you don't want to post here. I am guessing about $60/month?

It also should be taken on an empty stomach, because of the B12 content. Do the directions say that? If not, that omission is important. So follow the empty stomach recommendation I give for best absorption of the B12.

The D is low, but in a mixture, I wouldn't expect it to be higher.
He may need much more than these provide. But you will have to have testing to show that.

Dear mrsD
I have just joined as a member of NeuroTalk. I have CIPN since 2 years ago after my chemo treatment. I am not taking any medication or supplements at the moment although my oncologist prescribed Lyrica for me. I did some research and understand that there are side effects as with any medication. I am looking for supplements to help relieve my PN. Before I stumbled upon this support group, I ordered Vitamin B-6 (Pyridoxine)100 mg and Acetyl L-Carnitine & Alpha Lipoic Acid 650 mg from Swanson Vitamins. I have also come across PN supplements from WSN and Neuropathy Support Formula both of which contain various supplements in a single capsule. I am unsure whether I should order these supplements from them as I am not sure of their effectiveness. I have dealt with Swansons before and find them reputable. Are there other supplements that I should take other than those I had ordered? I aplogise if I am covering old ground. Please excuse me as I am a newbie.
Many thanks.

mrsD 04-09-2012 09:37 AM

The primary supplement in the literature for chemo damage is
acetyl carnitine.

Here is a recent post similar:
http://neurotalk.psychcentral.com/post867845-3.html

Alpha lipoic acid is the OLD version with necessity for taking very high doses to get results. Only 1/2 the old type which is a mixture of left and right handed molecules is active in the body.

There is a new one with improved solubility as well. So the ultimate answer is R-lipoic stabilized. Doctor's Best is the one I use and many others here as well.

I don't like Swanson's at this point. I was using Doctor's Best Theanine this summer, and ran out and tried Swanson's, for a month. It really didn't do the same job the Doctor's Best does for me. So while Swanson's has some interesting things in their catalog, the SunTheanine they package was not as effective as Doctor's Best. You can buy brand names out of their catalog for most other things you know. But I find Amazon just as affordable with free shipping over $25 now.

My comments earlier in the post are what I think about Neuropathy Support Formula. If you want to take that mixture and have the extra money for it... just take it on an empty stomach. It has the old alpha lipoic in it too. Keep that in mind.

tikigod18 04-09-2012 09:03 PM

Is this Neuropathy Support Formula something that would help for shingles-related neuropathy?

davidliew 04-12-2012 07:30 AM

Thank you very much mrsD for your prompt response. I have ordered Doctor's Best R-Lipoic Acid Stabilized, Source Naturals Methylcobalamin, Vitamin Shoppe Acetyl-L-Carnitine, and Source Naturals L-Theanine from Vitamin Shoppe. Some of the stores do not ship health supplements to Singapore eg Amazon.
Your willingness to help others with medical problems is exceptional and is to be applauded and I appreciate that very much. I will keep you updated on my progress once the supplements arrive. They informed me that they are on the way and I eagerly await their arrival. Best wishes to you.

RideOn 04-12-2012 08:56 AM

Quote:

Originally Posted by davidliew (Post 869082)
Thank you very much mrsD for your prompt response. I have ordered Doctor's Best R-Lipoic Acid Stabilized, Source Naturals Methylcobalamin, Vitamin Shoppe Acetyl-L-Carnitine, and Source Naturals L-Theanine from Vitamin Shoppe. Some of the stores do not ship health supplements to Singapore eg Amazon.
Your willingness to help others with medical problems is exceptional and is to be applauded and I appreciate that very much. I will keep you updated on my progress once the supplements arrive. They informed me that they are on the way and I eagerly await their arrival. Best wishes to you.

David, will be interested how you go with delivery. I used iherb to Australia, $12 shipping and arrived in about 1 week.

davidliew 04-12-2012 10:59 PM

Quote:

Originally Posted by RideOn (Post 869112)
David, will be interested how you go with delivery. I used iherb to Australia, $12 shipping and arrived in about 1 week.

Thanks RideOn
I will check iherb out. The shipping charge from Vitamin Shoppe was about $65 for about 6 small bottles. Cheers

mrsD 04-13-2012 01:53 AM

iherb.com is wonderful. They have so much there, and are prompt and the products have long expiration dates, and they ship just about anywhere. Their discounts are good too.

davidliew 04-13-2012 08:11 AM

Quote:

Originally Posted by mrsD (Post 869370)
iherb.com is wonderful. They have so much there, and are prompt and the products have long expiration dates, and they ship just about anywhere. Their discounts are good too.

Hi mrsD and RideOn
Just to let you know that I have ordered some bottles from iherb and yes they have a wide range of products. Their catalogue is also very organized and I can find lots of products under the doctors best brand. Their shipping charges to Singapore are just $12 by DHL, otherwise its free if tracking is not required. Their product prices are also cheaper for a start.
I will certainly go back to them for future supplies.
Thanks again for this recommendation RideOn.
Wish all good health.

numbfoot 04-24-2012 08:56 PM

Regarding "Neuropathy Support Formular"
 
I Have been following this thread.
This product has been available for a while now.
I have noted mrsD's comments about it, but was wondering if anyone has actually tryed it & if there have been any results either good or bad.


All times are GMT -5. The time now is 09:29 PM.

Powered by vBulletin • Copyright ©2000 - 2024, Jelsoft Enterprises Ltd.

vBulletin Optimisation provided by vB Optimise v2.7.1 (Lite) - vBulletin Mods & Addons Copyright © 2024 DragonByte Technologies Ltd.