Well, I just finally got a diagnosis of idiopathic SFN from a neurologist after going to my regular doctor for 3 years with no diagnosis. I requested to go to a neurologist because I knew something was wrong, not to mention the PAIN. The whole thing started when I turned 40 and woke up one day to aching in both my legs (shin area). Well, you know the drill, I also have tingling, burning, stabbing, weirdo feelings, blah, blah, blah. this now affects my feet as well. The neurologist has me taking Neurontin 400 mg at night and 300 mg in the morning. We are slowly increasing this dose because I told him I was still in pain. Now to the questions for you "professionals"..........
1) I realize I am on a wimpy dose of Neurontin. How much do you think is needed to be comfortable? Just an average from your experience.
2) What about this evil aching pain? any ideas on how to calm that down?
3) I do not feel like exercise. Should I push thru anyway? Would it help?
4) Any other ideas. I have been in pain so long. Just glad that I know what it is................
Thanks to all for any input. I look forward to sharing info. with you.
Janet