So I not alone
 

Glad I'm not the only one. My Dx is Idiopathic Polyneuropathy, which means many peripheral nerves throughout the body malfunction simultaneously and no one knows why.

Hope it is not CNS......
 

That is why I keep thinking late onset MS (CNS), have read that can also start with abnormal sensory sensations.......scares me.........thinking about visiting an MS specialist, just for peace of mind. I am a professional worrier (I am sure you all noticed!)

One thing that all the Dr.s I've seen told me is that MS is not all over body, it will effect one area at a time. I still insisted on an MRI, but it was negative. But I too have wondered. But with MS there are muscle control issues and alot of people loose vision or have blurred speach as first signs too. Guess yo can always have the MRI to give you peace of mind.

Rose to the rescue again.........
 

Thank you, my Dr. never told me that MS is usually in one area, he just keeps saying, "you don't have MS" (I like reasons). Thank you for that info, makes me feel better.

I like reasons too! Drives my Dr.'s crazy....I ask alot of questions. I think the prefer the paitents who don't ask questions, just take the RX and leave them alone. That is not me! I want real answers! :)

Last couple of times I've been to doctors I show up with notes so I don't forget to ask any of the questions I have. I've also brought print outs of information that I've found to ask questions. You have to be proactive with docs.

Daughter with normal EMG and skin biopsy
 

Ya'll, we are so frustrated and weary. Talked with our newest Pediatric Neuro at Children's National Medical Center after waiting 5 weeks for our child's skin biopsy results. They were normal. She had a normal EMG 2 years ago and 1 year ago. Yet, she has been hospitalized 10 times this past year for severe pain episodes. She has Type 1 diabetes, proximal muscle weakness, ptosis of the eyes, 2 unknown Mitochondrial mutations, a waddling gait, a hand tremor that comes and goes. The Neuro today suggested she is Psychosomatic. Really? She can fake all of the problems and abnormalities. Oh an MRI over a year ago showed "non-specific" white matter changes. Muscle biopsy showed Type 1 muscle fiber hypotrophy and a full body ultra sound showed increased subcutaneous fat and decreased echogenecity. So many, many, many unspecifics. But ya'll can there be that many abnormalities and be Psychosomatic. Ticked me off. Why is it so hard to get help and answers? :confused:

As I read your threads , you see that idiopathic is when doctors doesn't search. If you do all exams then you have the diagnosis..