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Old 11-21-2010, 05:58 PM #1
invisable invisable is offline
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Default If skin Biopsy and Emg are negative.......

Doesn't this mean one does not have neuropathy?
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Old 11-21-2010, 07:13 PM #2
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Let's start a club!! Both of join first!!! Lol
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Old 11-21-2010, 11:10 PM #3
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Default Yep!

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Let's start a club!! Both of join first!!! Lol
We are two of a kind, that's for sure!
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Old 11-21-2010, 11:14 PM #4
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Default And to make things more confusing.......

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Originally Posted by invisable View Post
We are two of a kind, that's for sure!
A quote from my neuro yesterday..........

"You have neurological symptoms, for which I can find no neurological cause"

Now, I ask you.....how is one supposed to react to that one?!
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Old 11-21-2010, 11:49 PM #5
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Well this is when it gets crazy. My Neuro told me disease can happen else where and create toxins for nerves. Like celiac! Even people with thyroid have these symptoms. So he told me you start investigating other possibilities but it gets crazy.

You are checking Paraneoplastic.

Like for me nephrologist is next as in need to investigate chronic blood in urine without infections.

But, it still can be deficiencies or reaction to some meds.
I know your thought process right now. We are in the same place with this. Going thru things it can be. And it's frustrating. But I am happy there is no real damage. As biopsy and Emg are normal.

Take care
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Old 11-22-2010, 07:35 AM #6
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Default Just a repeat post from another thread--

--but one can still get a diagnosis of neuropathy--likely "idiopathic"----if responses to manual nerve testing (which includes pin prick, reflex, and in some cases, monofilament testing), or results on quantitative sensory or abnormal testing (i.e, sudomtor axon reflex test, sweat test, Valsalva maneuver, tilt table) are abnormal. Admittedly, with some of this, one relies on the patient's reports in the absence of "harder, more objective" results.

Then, too, some docs won't give the diagnosis without such "harder, more objective" results.
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Old 11-22-2010, 02:58 PM #7
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Default So I not alone

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Originally Posted by invisable View Post
Doesn't this mean one does not have neuropathy?
Glad I'm not the only one. My Dx is Idiopathic Polyneuropathy, which means many peripheral nerves throughout the body malfunction simultaneously and no one knows why.
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Old 04-05-2021, 02:32 AM #8
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Quote:
Originally Posted by Hermes View Post
Glad I'm not the only one. My Dx is Idiopathic Polyneuropathy, which means many peripheral nerves throughout the body malfunction simultaneously and no one knows why.
As I read your threads , you see that idiopathic is when doctors doesn't search. If you do all exams then you have the diagnosis..
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