This one is important, not only because it deals with gluten problems presenting as neurological disruption, not only because it mentions the work of Dr. Hadjivassiliou in that realm, but because it appears in the Huffington Post health section, which is now very widely read and where a lot of people are likely to see it:

http://www.huffingtonpost.com/dr-dav..._b_785901.html

Maybe not specific to peripheral neuropathy, but we've been talking a long time here how anybody labelled with idiopathic neuropathy needs to be tested for gluten and possibly other food sensitivites-- there is good evidence for some cases of gluten-mediated peripheral neuropathy.

That is really interesting.....'a purely neurological disease'. Wow.

I had blood antibodies drawn=negative. I had small intestine biopsy=negative....I imagine there is NO way I could have this??

I tried going strictly gluten free ....totally, I even baked all my own stuff and ate nothing processed. It was exhausting, and it didn't seem I felt any better, but this all makes me wonder. Hmmm

Your only symptoms may have been the neuropathy, and it would take a long time for you to notice that getting better. Little did I know way back then (11 yrs ago or so), when I was diagnosed with carpal tunnel, but that was one of my symptoms of gluten intolerance too. I also had the nasty stomach issues and neurological issues other than neuropathy. I had terrible panic attacks, a touch of agoraphobia, and anticapatory anxiety.

I was gluten free for 4 yrs before I read about B12, that's when I started taking it and greatly slowed the progression of my neuropathy. My neuropathy stabilized somewhat, yet I still was having stomach issues. That's when I found out all grains are bad for me, plus nightshades, and cruciferous veggies. It's been a long road to get where I am and for now, at least my tummy is agreeable most of the time. I still have neuropathy, probably always will.

I am thankful to doctors like Dr. Hadjivassiliou. He is leading the way for others to follow, and follow, I hope they do. I am also thankful for my neuro, Dr. Gudesplatt, he's been great with me, never tells me I am nuts, that means a lot!

I am constantly nauseated....it is a real pain.

Well, it could be gluten, and also could be your meds, or even a combination of both. Of course, if and when you go gluten free, you also have tomake sure your meds are gluten free. Gluten free doesn't work unless you go totally gluten free.There are so many rules to gluten freedom!!!

For years, Pfizer said that Xanax was gluten free. I had terrible panic attacks for several years and used Xanax, which I was sure couldn't be an issue, Phizer said so. Well, they lied. I called them and spoke with a pharmicist there and he said, it had never been gluten free, then denied that they released any info to the contrary. By the way, they are still saying it's gluten free.So, I searched and searched until I found a lab that does make generic Xanax gluten free, and never react to it. When I would take Pfizer's Xanax, it would work that day, then the next day I was always sicker, and I just assumed (which we all know what that means) the reaction was from something else.

So, gluten free is a commitment, and I will not say it's easy, it's not. You have to read every label, analyze what they say, then analyze again. I find sticking to items with the least amount of ingredients is the easiest. Now, I do not eat processed foods, which makes it much easier.

I hardly take anything, but I eat wheat. I dunno....pretty much given up trying to figure out what this is, or how to make myself feel better....Even with a +ANA these days...I am not convinced. I had PN way, way before the AI disease was diagnosed....like decades.

Xanax all by itself is a miserable drug. The rebound when it wears off is almost incapacitating. All benzo's seem to be like this, with low dose valium the least....even baclofen, which is similar to a benzo has a benzo like withdrawal, which is hideous.

I am glad you feel better being gluten free. Being gluten free can not be easy.

I may give the gluten free thing a try after Thanksgiving. But my GI swears it isn't it....he has been wrong about other things.

To be honest, most doctors do not think about celiac, and rarely ever gluten intolerance. Then you have the pharmaceutical companies who don't want gluten mentioned since there are no meds for this problem.

Just so you know, most of us are addicted to gluten, especially wheat. I used to think toast was my best friend. Wheat calls out our names and we want it. Many of us go through a true mourning period when giving up gluten, sad, isn't it?

I have had severe neuropathy (no pain, just numbness) for over a year. It was mild and tolerable, but I had IVIG done anyway. Less than a month later, I got pregnant, and it got terrible. My feet, hands, neck, head, arms, back, etc. Around the same time as the IVIG, I was also diagnosed celiac. My neuropathy has never gotten better, my son is 9 months old. What would make it get so drastically worse in that short time frame? I also have not had a menstrual cycle since.I feel I am at the mercy of my neurologist who seems utterly stumped. Any ideas??

Are you taking any supplements? Multi vitamins, B12, B Complex? Are you positive you are gluten free? Gluten hides in so much and it's very easy to be getting gluten when you don't realize it's in something you think is safe. Maybe you have other intolerances. It wasn't long after I went gluten free that I found soy was just as bad for me, then corn. What do you eat? Have you checked out thge vitamins, if you are taking them to be sure there is no gluten in them. Shampoos and soaps can contain gluten and you can get glutened by them. You need to give me more of an idea what is going on in your life. Feel free to email my aol addy too, just put celiac in the subject line the first time!

Sometimes when women get pregnant, there can be a shift in thyroid function. I think this is what happened to me. During and after my pregnancy I had severe problems with my hands.

My blood work was sort of normal... but I developed a goiter, and then went to a specialist who ordered a technicium uptake (radioactive) which showed my left lobe was not working.

After getting the proper replacement my feet (which were numb by then) and my hands improved dramatically.

No periods? That suggests an endocrine hormone problem too.