As i sit here without a diagnoses. i think about what i am scared of and realize that many like me are in same boat.

i am scared that no one knows why i am having these symptoms. so what scares me is what if this gets worse. the meds i take occaisionaly dont work that much so i dont want to take stronger. plus....bieng hospitalized with no one knowing. have heard horror stories of people who get treated bad sine doctors cant figure it out and patients get misunderstood.

random thoughts....

i had good two weeks..meaning mild or low that i just kept ignoring. and here we go again....

what did i do different. nothing!. i havent started any vitmians yet. or changed any diets so what happened the two weeks it was mild.

well right before it went worse again i had bad sore throat for two days.
so i think i had virus and now this!!

i am assesing my test done and what needs to be done.

one question. if my skin biopsy normal. (only one spot tested)

then should i still get the anti-sulfatide and others done?

so far...glucose tolerance mild abnormal
ige, iga, igg, and subclass ig2 elevated
vitamin d dieficiant
sed rate elevated (40)
and stool test for celiec is showing some abnormalities.

but mine is more cramping and mostly constant all over pulling feling and spasms. especially worsend with movements.

what do you guys think about the home genetic testing.

thanks

Can I ask what your symptoms are again? Do you have all over burning pain?

I too am undiagnosed. I have all over body burning pain, parasthesias, and muscle twitches. The only test that was positive for me was a slightly elevated IGA.

My neurologist told me that he sees alot of people like me and that the neurology field is seeing more of us, and that they don't yet have a name for it. I've been referred to a pain specialist but am waiting for the appointment in 6 weeks.

Rose,

I have muscle spasms and cramps all o er my body head to toe. ( even in face, scalp, throat tightnes, chest, rectal area, etc)
Sharp stabbing, pinching, pin pricks stingig, burning pins and needles, severe twitching, tearing, water trickling like, severe stiffness etc...

Little activity and small movement and believe it or not breathing action of chest expanding is causing spasms in chest, breast and ribs.
Constant migrating lightning bolts!!!

I don't know if u have ever experience a diaphragm spasm. Sudden pain wher it stops u until u breath it out slowly!!

I get these all the time. And oh even a burp sets it off. So I hate these!

And throbbing horrible pain tearing into toe and fingers.
I can live with twitchig!!!

Yeterday it turns out all my family members twitch and we were comparing!
But they don't hurt!!! On regular basis especially all the time!!

They don't hurt! They don't have electric jolts running thru their body constantly!!

I hate this rose! I don't even have insurance any more I am so scared,

I have started hang these nerve pain in rectal area! Use to have them randomly.

There are still so many test that need to be done but I am limited now.

Rose what arre ur symptoms. And what test have u had done