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- - Questions (https://www.neurotalk.org/peripheral-neuropathy/142023-questions.html)

Quote:

Originally Posted by Tulips (Post 730967)

Mrs d I know I had this before I got flu shot but the flu shot in 2003 ruined my life. I went from 10 to 10 million. Doctors don't admit it. Only one Neuro says well if u have immune system problem and that's where my symptoms are coming from then it makes sense that it was an attack for my body and it couldn't handle it.

I have had this since 17 and now 32!! It's been exhausting! I am exhausted from hurting. And I mourn the life I lost! Don't want to be a victim but it's sad.

Tulips

is exactly how I am feeling lately, exhausted from the pain and emotionally and mentally exhausted from trying to find out where it came from.

Tulips, does your blood work show autoimmune or immune problems?

Hello

Well my Sed rate is always elevated but not alarmingly high. But that's non specific. So when thing ran other kinds of test against this all is normal. Like lupus. Sjogren. Etc..

Other then that iga, igg, iga and sub class ig2 is elevated
Plus my recent fecal test for gluten shows activity .
So...

Funny thing is the doctor ran the IG test but now is clueless to what to make of the elevations and that's just amazing to me.

Tulips

Quote:

Originally Posted by Tulips (Post 731046)

A hematologist can interperate those IG results. I had mine looked at by one but he said it was not elevated enough to be of concern and to have it tested in one year.

Quote:

Originally Posted by Tulips (Post 731046)

Hello

Well my Sed rate is always elevated but not alarmingly high. But that's non specific. So when thing ran other kinds of test against this all is normal. Like lupus. Sjogren. Etc..

Other then that iga, igg, iga and sub class ig2 is elevated
Plus my recent fecal test for gluten shows activity .
So...

Funny thing is the doctor ran the IG test but now is clueless to what to make of the elevations and that's just amazing to me.

Tulips

This is not unusual... many doctors can't evaluate tests perfectly.
One glaring thing they don't attend to is elevated MCV in a CBC differential test. Elevated MCV is a precursor to low B12 anemia, when the RBC is still normal. An alert doctor could spare his patients so much neuro grief by attending to this
warning sign. But they don't.

When I had my B12 run this month, my doctor pooh poohed oral B12 supplements. I told her... wanna bet? I tested out at the max the lab could read (1999). I was trying the new methyl B12 from Puritan's Pride... which worked splendidly for me.
My average B12 was in the 800's before. Since I am going to try metformin again...having a current B12 reading is important, since this drug depletes it.

These days it is really important to be an informed patient, and take control of YOUR own body when possible.