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-   -   I'm officially idiopathic.... (https://www.neurotalk.org/peripheral-neuropathy/143350-im-officially-idiopathic.html)

Megan 01-23-2011 06:09 AM

The real problem here is that they haven't yet 'invented' all the tests that there are to invent in order to unravel some of these mysteries. So when they say that ALL your tests have come back negative it's because they haven't tested for the right thing/s either because the test doesn't exist yet or because they give up too soon before eliminating all the possibilities!

The reality is that you need to keep your radar on alert for future changes in medical advancement, as the doctors/neurologists you have seen certainly wont chase you to up to tell you about them.

I’ve been recently reading a bit about Sensory Ganglionitis which unfortunately can only really be eliminated as pathophysiology underlying the various forms of neuropathies/polyneuropathies during an autopsy/post-mortem which is a touch too late for us! You may want to look at http://www.medlink.com/medlinkcontent.asp (part article).

glenntaj 01-23-2011 07:28 AM

Good point.
 
I do like to remind people that a lot of the sophisticated blood tests for autoantibodies to nerve and for certain hereditary neuromuscular conditions have only been developed in the last two-three decades; in 1980 thre were even more people labelled "idiopathic" (at least as a percentage of people with neurologic symptoms--it's a fair question as to whether the incidence of such symptoms has risen, given our diets and the toxins in our environments).

I had to laugh about the final sensory ganglioitis comment--Dr. Abhey Moghekar at Johns Hopkins, who has done a lot of research in that area and who I've corresponded with, did tell me at one point that it was a possible etiology in my case, but we did not yet have the imaging technology to discern the condition of the dorsal root ganglia and that confirmation of such a diagnosis awaited my autopsy. (Typical neurologist humor, which is to say not much of.)

cyclelops 01-26-2011 04:23 PM

Ahhh Dr. Smith, you are trying to train a chocolate lab?? Heh, heh....

I have one....80# chocolate, then a 'silver' one which is a variation of chocolate, as I understand, 95# think Scooby Doo, then a lovely little yellow lady 'dudley' who is about 60#.....so maybe 200#+ of labrador. They are smart as a whip....snuggly, loyal and wonderful....but, my, my, as trained as mine are, they still do some stupid things. They shed enough fur to cover a 4th labrador every week.

They ate my Viactiv again...yes, they are fine....vet said it won't hurt. Yes, it was put away....mine 'do' door knobs.

nide44 01-27-2011 09:15 AM

Raised a few 'Labs' in my time. Intelligent, but stubborn, single minded- and can act as if you are stupid when giving them commands, :eek: if they don't want to listen.
Also are big 'chewers' when puppies.
I remember coming home to a 'winter wonderland'
in my family room when 2- 5 mo old lab pups decided
to tear apart a foam futon and 2 feather pillows. :cool:
They must've had a ball, and were so excited to see me when
I opened the door.

dahlek 01-27-2011 09:25 PM

To Bob's post? All I can....
 
say is: ISN'T TEETHING WONDERFUL???? :D:eek: Nuff Said ...
Who was it here that coined the word: IDIOTPATHIC? Bob, Echoes? Who?? I'm forgetting, BUT? It is soo APT!
:hug::hug::grouphug:' to/with all! - j

And, better a lab doing the destruction than a Russell! Also, once had an always hungry cat who'd chomp on the antiques! Wow?

Dr. Smith 01-28-2011 12:06 AM

Quote:

Originally Posted by cyclelops (Post 738862)
Ahhh Dr. Smith, you are trying to train a chocolate lab?? Heh, heh....

No, we are training him. :D
He's not our first, so we've been through this movie before. Our last, a black labbie, was a local legend. Sweetest gentlest soul of any creature I have ever known/met, but dumber'n a bag o hammers....

We're fortunate also to have the advice, guidance, & friendship of the best trainer/behavioral consultant in the northeastern US.

Doc

Dr. Smith 01-28-2011 12:11 AM

Is it Bob?
 
Is nide44 a Bob?

The sig looks kinda like Bab B on my screen....

Doc

pabb 01-28-2011 08:25 AM

Quote:

Originally Posted by Dr. Smith (Post 739353)
Is nide44 a Bob?

The sig looks kinda like Bab B on my screen....

Doc

most be your font......nide is indeed Bob

nide44 01-28-2011 09:24 AM

Quote:

Originally Posted by Dr. Smith (Post 739353)
Is nide44 a Bob?

The sig looks kinda like Bab B on my screen....

Doc

I most certainly AM a .... B O B :cool:!
(Masculine-definitely... and BYOB ;) )
I write about my wife enough, altho today
it doesn't seem to matter what sex a 'wife' (or husband) :confused: is.:eek:


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