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-   -   pn at my wits end (https://www.neurotalk.org/peripheral-neuropathy/143590-pn-wits.html)

John7685 01-23-2011 02:16 PM

Mrs D - Thanks for your reply. I will call at the Dr's today and get my B12 and D3 levels.

John7685 01-24-2011 04:28 AM

Mrs D - Went to the Dr today.
Results of tests:
B12 pmol/L 255 on 4 Sep 09 and 296 on 10 Jan 11.
I will give you some other results in case they are relevant:
R.C.F. nmol/L 1609 on 4 Sep 09 & 1338 on 10 Jan 11.
19 Jan 11: Serum Iron 18 umol/L, Transferrin 33 umol/L, Transferrin Saturation 28 %, Serum Ferritin 261 ug/L, Blood Lead 0.06 umol/L, Blood Lead 1.3 ug/dL, Zinc 13.7 umol/L.
No test done for Vit D3. Will request one this Friday, also one for pesticides. Thank you.

mrsD 01-24-2011 08:04 AM

Quote:

Originally Posted by John7685 (Post 738001)
Mrs D - Went to the Dr today.
Results of tests:
B12 pmol/L 255 on 4 Sep 09 and 296 on 10 Jan 11.
I will give you some other results in case they are relevant:
R.C.F. nmol/L 1609 on 4 Sep 09 & 1338 on 10 Jan 11.
19 Jan 11: Serum Iron 18 umol/L, Transferrin 33 umol/L, Transferrin Saturation 28 %, Serum Ferritin 261 ug/L, Blood Lead 0.06 umol/L, Blood Lead 1.3 ug/dL, Zinc 13.7 umol/L.
No test done for Vit D3. Will request one this Friday, also one for pesticides. Thank you.

Thanks John. Your results need conversion to US values:
http://www.unc.edu/~rowlett/units/sc...ical_data.html

Your B12 is borderline, the second one is just about 400. So you can choose to do it orally yourself. It might help some to try for 3 months or so.

Chlorinated hydrocarbon pesticides are stored in fat. That means, the brain and other fatty tissues(spinal cord) in the body. So testing later after exposure may not reveal them.
Losing body weight may release them back into the serum.

They are long known causes of neuropathies, but when I searched yours, it was given a "lower" incidence of toxicity. This opinion may change...since opinions like this exist for just about everything. BHA which was cleared as non toxic by US FDA, is now found to be a terrible substance, leading to obesity! It poisoned people for over 20 yrs!

John7685 01-25-2011 08:40 PM

Thanks for the info Mrs D. I will try the Benfotiamine 150MB Multi-B Neuropathy Support Formula for about 3 months. What daily dosage do you recommend. Also do you think I would benefit from trying a course of Alpha Lipoic Acid and if so what dosage.

mrsD 01-26-2011 05:28 AM

Is that Benfotiamine in a mixture? or is it alone?

If alone 300mg a day to start. After 2 or 3 months you may be able to go down to 150.

If that product is a mixture....please give me the other ingredients.

Alpha lipoic should start at 600mg a day.
The newer form, r-lipoic may be used at 100mg a day.

John7685 01-26-2011 07:35 AM

Thanks Mrs D. Benfotiamine 150MB Multi-B Neuropathy Support Formula - Ingredients: pharmaceutical grade benfotiamine, plus B2, B5, B6, methyl B12, folic acid, magnesium stearate, silicon dioxide, microcrystalline cellulose, gelatin.

mrsD 01-26-2011 07:49 AM

John, I need to know the milligrams of each thing too.

If it has that methyl B12 in it, you need to take it on an empty stomach in order for that to be absorbed properly.

John7685 01-26-2011 04:58 PM

I amso down with this terrible condition drugs so expensive dont think i could live to many years feeling likethis eating what savings i have away

mrsD 01-26-2011 05:07 PM

there are ways to save on supplements.

Many of us use iherb.com

I don't know where you are...but the test results suggest nonUS location.

The one you chose is more expensive than most.

John7685 01-26-2011 06:03 PM

mrs D supplements are expensive can not buy any ones that i need her in australia lyrica 75 mg 80 dollars a box iam so worried how iwill cope if i can not work money wise and mental health wise i have a wonderful wife who is so strong and i love her so much sorry for going on i realize i must focus on controlling my pn and being depressed will not help


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