Well--
 

--one of the most common associations of Sjogren's syndrome is ganglionitis or neuronopathy:

http://neuromuscular.wustl.edu/antib...n.html#sjogren

And yes, "the odd sensations"--parastheses, in medical terms--can range from those caused by actual muscle fasciulations to those that feel like muscles are in movement when they are in reality quiet (and this is even demonstrable on EMG testing); I know I get feelings of crawling, feelings of water slowly dripping (when nothing is there, of course), periodic pulses, electrial zings, tingles, a feeling of flushing or slowly spreading warmth . . .never mind the actual neural pain. I tend to agree with Mrs. D that a lot of these erroneous sensations come from compressive forces on nerve that cause signals that the brain has trouble interpreting.

The neuro also feels this would explain not just the sensation issues, but balance/gait, abnormal proprioception, and pain. I did see that ganglionitis can also be associated with autonomic dysfunction....of which I have every possible aspect from difficulty urinating, heart rate (have pacemaker), BP, gastroparesis, vasospasms, livedo...you name it. And the significant cognitive problems are just a bonus :wink:

I would also suggest you avoid hot tubs or heat treatments when you have this feeling.

Too much heat, or too much direct ICE may make this worse.

If you are doing alot of heat (because it feels good), stop for a while and see what happens, if there is any change. Heat really stimulates nerves and can confuse the issues you have.

Hello,
I remember the type of sensations you all are describing, now all I have is a stiff burning numbness and leg weakness. Does anybody know how many stages of PN exists, my PN is a result of the statin Zocor. Thanks