I know there are many wonderful things that go with peripheral neuropathy, but I have terrible vibrations from the waist down...more so proximal, then distal. These are not pins & needles (been there done that). This is not the same.

They seem focused in the back sides of the legs (but very deep, not surface) and through the butt. They can be constant or pulsate in 2-3 second intervals.

Is this truly neuropathy? Do many of you get these? Is there any clue what can make these subside?

Thanks in advance for any suggestions or comments.

Do these seem like fasciculations? There are a number of causes including motor neuron problems. If this might be what's happening, there is quite a bit of info online about fasciculation.

Sheltiemom

I've had vibrations but not regularly. Usually it is when I am ill, or when my lower back is wonky. Never 24/7 or even close to that. I think buzzing is a more accurate description of what I feel at those times.

Putting a strong magnet with the wrong pole against the skin has done it for me too. Only S pole keeps nerves quiet. N pole towards the skin activates nerves.

Buzzing or vibrations would suggest to me, compression, or some inflammatory assault on nerves. Watch your MSG intake, because MSG can really stimulate nerves. (glutamate flooding).

I get what I describe as oscillations....kind of like a sound that starts low and crescendos and goes down...but feeling it. (I know this sounds so absurd and Twilight Zone like.)

Good question, I hadn't thought of that. I do have fasciculations in the eyelids...one or the other, but not both at the same time. I infrequently get them in my thigh or calf also, but usually can see it twitch and typically only a small area is affected.

This vibration feeling is very deep inside so I guess it could be fasciculations, just not visible. Although I've had them on/off for several years (with no idea what they are), they are lasting days now instead of hours. I can wake up at night and they are still going strong. This latest round is pushing a full week now with only short breaks

I'll have to do some more research. I have always had normal EMG's...but then again I wonder if it would have to catch it in the act in order for something to show. Is this how they confirm fasciculations...EMG?

I had no idea MSG affected the nerves that much. I'll be sure to keep an eye on that.

Thanks for idea about the magnet. Sadly, magnets and pacemakers don't mix well, so I'll have to pass on that one. I'd think it's far enough away from the chest, but my cardio would run me up the flagpole if I inadvertently reset the device.

I just recently had an MRI done (yes, Johns Hopkins has a new pilot program to do these on patients with pacemakers and I was able to participate a couple weeks ago). I don't have results yet, but while my neuro had the opportunity (took almost 9 months to get in the program), he had them do brain and entire spine, so it will be interesting to see what it shows.

I used the magnet as an example. One cannot use magnets if one has an implanted electrical medical device. Wrong pole=stimulation.

So if one can get buzzing from stimulating nerves, that is a clue.

Nerves can be stimulated from too much heat, MSG, or compression, or some other "damage issue".

If you suspect fasiculations, I'd really look into magnesium supplements. Even some medical question answer places on the net have doctors now recommending this intervention. I am stunned to say the least.

Here is my magnesium thread...I've been posting about it for about 8 yrs now:

http://neurotalk.psychcentral.com/thread1138.html

How to select a good supplement and how it works, is important to understand.

Sort of sounds like a good description of these.

You know, i just remembered my first neurologist (15 years ago) actually put his hand on the bottom of my foot (that's where it was happening at the time in his office) and he could feel it....this slow pulsating buzz. He had no clue what is was though.

What causes your oscillations...PN? Sort of a strange question, but has anyone ever been able to feel them but you?

I don't know what causes my oscillations...but, I have been known to foretell the future.

MrsD: Could/would never risk the pacer. Thanks.

Everyone: Thanks for the replies. Ironically my neuro called tonight at 8:30 PM from his home to give me my MRI's results (what a trooper). The report shows ganglionitis in the lumbar area but he will review the scans himself as well.

SO, this may very well be why I have so much buzzing and vibrations from the waist down. He also says it could explain the PN as well as several other neuro issues.

I know nothing about ganglionitis, (other than his suspicion 2 years ago of dorsal root ganglionitis or -opathy based upon neuro exam), so any input would be greatly appreciated. I do have autoimmune disease (lip biopsy shows end stage Sjogren's, but I'm sero-negative) so he feels this is the cause of the inflammation.

After 11 years of IVIG (up until 2006), I had a severe case of aseptic meningitis which meant no further infusions. My neuro would love to have this as a option, but he thinks we'll have to pursue immunesuppressants or other systemic treatment. Needless to say we didn't spend 30 minutes discussing treatments over the phone on a Friday night, so I will be heading back to Hopkins for a sit down with him sometime soon.

I'm sure there is a way to search this site itself for terms/conditions, but I'm new here and still learning to navigate. My initial surfing of the current conditions & threads didn't pull anything up. I'll also head over to Google to see what it has to say.