[Lupin]

Hello all,

I am new to this forum; in fact I have never posted on any Internet forums before. I have been reading this forum on and off for the last month after getting a preliminary diagnosis from by GP of Peripheral Neuropathy. I have all the classic symptoms, and all the pain and depression that goes with it!

My onset was very sudden, just after Christmas, it initially came on in the right foot which I injured in March last year. An orthopaedic surgeon was treating me but when the pain started in my left foot he had Nerve Conduction Studies of both feet and they were normal, he did this to rule out tarsal tunnel.

I am still in a state of shock but I would really appreciate your advice on what I should be asking the neurosurgeon who I am due to see next Monday 5 March.

I will post my profile later but I have only just plucked up the courage to post here.

Thanks all to all of you and I hope you can give me some advice.

Lupin (from the UK)

[rose]

Welcome,

The board was very slow earlier, so I gave up on it for a while. Could be that others had the same experience. We certainly don't mean to ignore you.

My first thought is that it sounds like something systemic is probably going on. So I would caution you not to accept any kind of cutting, at least not without extensive exploration on your part.

Some of us worked with Liza Jane to put many tests in one place that may show a cause. I believe lizajane.org is the location.

I suggest that you also explore the vitamin and mineral deficiency forum. Very good information regarding various nutrients, malabsorption, depletion, etc.

rose

[Lupin]

Thanks for your response.

Certainly there has been no suggestion that any surgical intervention is on the cards. I have had lots of blood tests, all normal, but I am waiting for the vitamin B and diabetes test results.I have been taking a vitamin B combination supplement since this all started in December last year but it is a low dose the B12 is 5.0 ug I am not sure if this daily is sufficant. I need to do some more research into the whole vitamin B issue and I will be visting your website for more information.

I really just want some ideas about what tests might be done for PN so I can make sure that I am not getting the run around ie being told it is all in my head! I have looked at LizaJane's website but cannot claim that I understand what it all means!

Thanks again

[dahlek]

I understand what you mean about Liza Jane's worksheets...they were intimidating to me at first also. BUT, once you learn a bit more, and what it all means, it will make sense and fall into place.

Start by clicking on this site: www.Neuroexam.org It's a site that explains what all neuro's do, test and look for during each step of diagnosing PN and other neuro conditions.

Also, read the 'stickies' at the top of this category, they are chock full of good info.

You are on the right path from what you've said so far. - j

[HeyJoe]

And of course you can always ask your questions here, someone (probably Glenn) will know the answer, now that Liza Jane will be gone for a little while.

[MelodyL]

Hi, don't know if you have already had an EMG but everybody who has been diagnosed with PN has had an EMG!!!

If you had yours, what were the results???

be well.

Melody

[Lupin]

I have not had this test only blood test and a nerve conduction test which was nomal but I understand this test does not pick always pick up NP. I will certainly ask about this test.

[rose]

Do get copies of all your lab results, complete results including: number and unit of measure and "normal range."

rose