Melody,

Thanks so much for the reply. Love the UTube video.

I would love to come to the next meeting. I know the city pretty well so it's not a problem getting there, I live in NJ.

I hope I would not be intruding because I don't have the typical PN that most have. I always read about PN in the feet, hands but mine is in the elbow area. My injury was a serious one, I had to have a prosthetic elbow inserted, many complications, many surgeries to fix the complications, then came the RSD and there treatments. Years later I am doing pretty well but still left with this strange type of constant pain, most of the RSD symtoms are under control. So to sum up I have been trying to get someone to work with me to find out if I definitly have PN, my doctors who have worked with me for years, say yes you do have some PN in there. But after all I've been through I keep getting answers like theres not much to do, it's not that bad. But for me if I could get rid of this last bit of pain and discomfort I would almost be back to normal. It's a very strange pain and effects me in the endurance area which keeps me from doing things like vacuum, sweep, garden anything that you have to use your arms for and keep them moving, like pushing, pulling etc. yet I can probably lift 50lbs it's very strange. So that's my problem.

Thanks Again,

Gabbycakes

Melody that was so sweet the you tube video. I like putting a name to a face.
Gabby I think you would be very welcome and surprised at how many people are not what you would think "typical" pn. When I was at the pain clinic support groups even people with other conditions that caused pain or health problems we all shared a common bond and could relate to each other.

Gabbycakes.

I'm trying to picture myself as you walk in the room and I'm saying "oh hi Gabbycakes". That's what happened when Glen walked into the room the first time. I had never met him. We were all sitting around and he walked in and he was talking about sprouts and I thought he was Steve Myerowitz the Sproutman, and I ran up to him and said "Oh, you're the Sproutman", and he laughed and said "you know me from Neurotalks, I'm Glenntaj and I almost dropped to the floor I was so surprised. I started saying "This is Glenntaj from the internet group I go to".

We all laughed. It is SO nice to put faces to names. Sometimes pain conditions can really do us in, no matter what the cause.

At this particular PN Support meeting we have people with various kinds of Neuropathy. Some gals have Bladder neuropathy, pelvic neuropathies, some guys and gals have Peripheral neuropathies (hands and feet). Many have had surgeries on their backs and have PN because of that. Some have PN because they had been on chemo, etc.

So you see, there are many various reasons a person can have PN. Some of us are diabetics also. Steven Smith runs the meeting and if you need a hookup with a doctor near where you live or even in NYC, one of us will direct you to the proper guy. Steven knows EVERY doc there is to know in the area of PN. He even has doctors phoning him with questions about THEIR patients. We all learn from each other.

So you are most welcome to come and enjoy a few hours of information, laughs and of course my muffins.

I believe I'm making Banana chocolate chip next month.

Of course there is always the possibility of some people not showing up because of inclement weather or people are sick but by and large, people show up, we listen, we chat and we learn.

So I am very much looking forward to you coming. But you have to tell me who you are when you walk in.

lol

Melody

Hi Melody,

Thanks again for the information. I will definitly try and make it next month. All of my doctors are in NYC so I' m in the city a alot.

I can't wait for your muffins and I will let you know when I walk in.

Gabbycakes

Sounds like a plan Gabby!!!!
See!! I called you Gabby.

lol

Melody

See you there.

You are very kind. Thank you.

Gabbycakes