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Old 03-18-2011, 08:32 PM #1
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Default March 2011 PN Support Group

So we went to NYC and when we got there the St. Patricks Day parade had just ended. All those people wearing crazy hats, and green costumes, what a sight?

But the meeting was very interesting. We had a guest there from Italy. She is studying in our country and her expertise is Studying the course of neuropathy in mice. It's only in the infant stage but wow, at least SOMEONE is doing something about neuropathy.

And the next meeting is sure to raise eyebrows. A chiropractor is coming to tell us all about this laser treatment he uses and he says it CURES NEUROPATHY.

Our support group leader is going to make sure he is not a con man or someone out to take any money. Steven always makes sure who our speakers are before they can speak to us. He investigates everything.

I told him 'We are going to pounce on this guy, you better believe we all will have questions for him".

For example, what kind of laser, where does the laser go, how does it help us with neuropathy pain? Steven said the chiropractor said he gets rid of ALL neuropathic pain.

Cannot wait till the next meeting and be advised I'll update everyone on what is said at that time.

Bye for now.

Melody
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Old 03-18-2011, 08:38 PM #2
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I just googled Laser Treatment for Neuropathy and I found this article.


http://www.merchantcircle.com/blogs/...y-work-/536389

Very interesting.

Melody
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Old 03-19-2011, 12:03 AM #3
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Lightbulb

There is a new franchise of chiros, advertising this.

Watch out...they are slick! and expensive!

They offer free first visit, and that is your clue.
If the words "functional medicine" are mentioned, then this
is the keyword to watch for. (basically they use the same supplements we discuss here, only they charge very high prices for all the testing, and supplements)

Some chiros are using cold lasers:
http://www.ehow.com/about_5036278_co...europathy.html
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Old 03-19-2011, 05:10 AM #4
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Quote:
Originally Posted by MelodyL View Post
So we went to NYC and when we got there the St. Patricks Day parade had just ended. All those people wearing crazy hats, and green costumes, what a sight?

But the meeting was very interesting. We had a guest there from Italy. She is studying in our country and her expertise is Studying the course of neuropathy in mice. It's only in the infant stage but wow, at least SOMEONE is doing something about neuropathy.

And the next meeting is sure to raise eyebrows. A chiropractor is coming to tell us all about this laser treatment he uses and he says it CURES NEUROPATHY.

Our support group leader is going to make sure he is not a con man or someone out to take any money. Steven always makes sure who our speakers are before they can speak to us. He investigates everything.

I told him 'We are going to pounce on this guy, you better believe we all will have questions for him".

For example, what kind of laser, where does the laser go, how does it help us with neuropathy pain? Steven said the chiropractor said he gets rid of ALL neuropathic pain.

Cannot wait till the next meeting and be advised I'll update everyone on what is said at that time.

Bye for now.

Melody
Hi Melody,

Is this a public type seminar meeting on neuropathy? If so I would greatly appreciate any information as I need to get educated on neuropathies. I have had RSD and PN for years but my doctors have always concertrated on the RSD and the injury I had and PN always takes a back seat. I'm at the point that the RSD is under control for the most part. I have been working PT for 2 years now, I am on disablity, but they allow a certain amount of dollars a month actually they advocate it. Anyway I am making it a priority this year to find out the last thing that is lingering from my injury. What I have found out is finding a doctor who in extremely knowledgable in this area and if they are do they want to try and fix it, I am not looking for treatments, pills I want a fix. Maybe I'm being ingnorant but I'm going to try and really put a big effort into it.

Anyway, again I would appreciate any information.

Gabbycakes
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Old 03-19-2011, 07:24 AM #5
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Default Gabbycakes--

The meeting Melody refers to is the monthly meeting of the New York City Neuropathy Association support group. I've been to a number of them (though not this month--my son's basketball team is in the midst of playoffs and they had a game Thursday night, and I'm assistant coach), and anyone can come--there are many discussions of experiences, treatments, research, and the like.

I definitely want to come to the next one, as I too am skeptical of laser treatment being able to "cure" neuropathy. Those of us who've done our homework are quite aware of how elusive and persistent this beast is, and how to this point there's been little that is effective across all the many different types and manifestations of neuropathy.

There may be use for lasers applied in certain ways. Obviously, lasers can be used to burn away certain nerve overactive pathways, as in a rhizotomy--though I doubt the technology is advanced enough to make this practical for many people, as the laser would have to be targeted with micrometric accuracy on certain pathways and not others--and lasers targeted at certain tissues might help with circulation, as in anodyne therapy, which can secondarily help with neuropathy and other conditions primarily by promoting the conditions for healing--allowing oxygen and blood-carried nutrients into damaged neural areas and allowing for wastes and toxins to be transported out--but I am skeptical of global claims.

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Old 03-19-2011, 08:02 AM #6
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Mel,
Watch out for snake-oil salesmen.
I had a chiro tell me he could cure my neuropathy in just 20 visits
at $75 a visit ($1400.00-not insurance covered)
with a 10% discount if I paid it up-front.
Riiiight!!
I did go to him for an x-ray of my finger (trigger finger)
and he gratis x-rayed my feet & spine
(so fuzzy I couldn't tell if it was me or a cat).
I thanked him, paid for the finger x-ray and didn't let
the door hit me in my butt on the way out.
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Old 03-19-2011, 08:35 AM #7
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I don't mean to be a "debbier" downer but any doctor to me who says he can cure this is a salesman. It is one thing to say you can have better relief etc but to say cure is a huge word. I saw a holistic doctor ones who my grandfather see's monthly. My grandfather spends hundred a month on supplements and the holistic doc tried to get me to do the same. The doc even had his own website with supplements. I just don't like that kind of care. It seems less about the interest of a patient and more about the $.
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Old 03-19-2011, 09:19 AM #8
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Quote:
Originally Posted by gabbycakes View Post
Hi Melody,

Is this a public type seminar meeting on neuropathy? If so I would greatly appreciate any information as I need to get educated on neuropathies. I have had RSD and PN for years but my doctors have always concertrated on the RSD and the injury I had and PN always takes a back seat. I'm at the point that the RSD is under control for the most part. I have been working PT for 2 years now, I am on disablity, but they allow a certain amount of dollars a month actually they advocate it. Anyway I am making it a priority this year to find out the last thing that is lingering from my injury. What I have found out is finding a doctor who in extremely knowledgable in this area and if they are do they want to try and fix it, I am not looking for treatments, pills I want a fix. Maybe I'm being ingnorant but I'm going to try and really put a big effort into it.

Anyway, again I would appreciate any information.

Gabbycakes
Hi there Gabbycakes:

Every month, on the 3rd Thursday of the month we all meet at the CBS building in NYC, in a big room with a big table. As a matter of fact I have a video up on youtube which will show you what a meeting looks like.

Here is one of the videos that I have up. You can link to my others. Just look for where it says PN Meeting. I have two others which actually show one of the people from the Neuropathy Association and what their goals are.

So go here first.

http://www.youtube.com/watch?v=s-WFkd7H4TQ

And you'll see me, and Glenn from Neurotalks and you'll see how we all get along and we have coffee and cake. It's a support group, not a seminar.

But we do have the occasional guest speaker or doctor come and speak to us. That's why we are all VERY interested in what this new guy will say when he comes next month. I shall report back here.

I know you are looking for a fix. We all are. The only helpful thing I can share with you is my experience with diabetic neuropathy. I have been taking 5000 of the Methyl B-12 for over 2 years now.

BEST THING I EVER DID.

Hope this helps.

melody
P.S. I don't know where you live but if you give me the location of your city, I can try and find you a support group as close to you as possible.
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Old 03-19-2011, 09:21 AM #9
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Hi Glenn:

We missed you Thursday night. Steven said "Where's Glenn"??

You missed my blueberry muffins. Want to know how good they were? Because they were so good and I didn't make enough last time, I made sure to make 24 this time.

After everyone had their muffins, there were a few left over. At the end of the meeting, I stood up holding the tray of muffins and I said "who wants to take home some muffins?"

There are now no muffins left.

lol lol lol

Glenn it was a really good meeting. But we all can't wait until the next one and I'm glad you are coming. Steve says he's going to make sure this guy is not a con man or anything like that.

So we shall see.

Melody
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Old 03-19-2011, 09:23 AM #10
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Quote:
Originally Posted by daniella View Post
I don't mean to be a "debbier" downer but any doctor to me who says he can cure this is a salesman. It is one thing to say you can have better relief etc but to say cure is a huge word. I saw a holistic doctor ones who my grandfather see's monthly. My grandfather spends hundred a month on supplements and the holistic doc tried to get me to do the same. The doc even had his own website with supplements. I just don't like that kind of care. It seems less about the interest of a patient and more about the $.
Daniella, I completely agree.

The only chiropractic neurologist we ever saw was Dr. Theirl, who took Alan on as a patient about 7 years ago and completely changed his life. I mean, literally, he spent over one hour with Alan every time he went and he used this G5 machine which, when Alan came home, well he was a different human being. Unfortunately, this doctor no longer practices in NYC. Alan loved him.

So we shall see what this new chiro guy says next month at the next meeting.

Melody
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