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Old 03-26-2011, 06:19 AM   #1
drswami
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I have had SFN for 2 years and 2 weeks ago was dx with pre-diabetes. My fasting glucose has always been below "normal" levels. It wasn't until I asked for an OGTT test and an insulin test that I discovered the problem. I have now cut my carbs to about 10% per day and have attained good blood glucose readings.

I have recently read a number of articles on Ketogenic and Gap diets, and because high BG has played a part in causing SNF I am now considering cutting carbs even further. I am wondering if anyone has tried either of these diets and had any success?

http://www.ncbi.nlm.nih.gov/pmc/articles/PMC2367001/

I also read this recently and wonder if anyone has any ideas on it.

http://www.ncbi.nlm.nih.gov/pubmed/20396384
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Old 03-26-2011, 07:14 AM   #2
mrsD
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I really don't know if this is necessary for the peripheral nervous system.

The ketogenic diet is very hard to maintain.

I am following a low carb diet called a "slow carb" diet which substitutes beans for most carbs.

Avoidance of sugar, even fruit is recommended by this diet.
Since I discovered my fructose intolerance 3 yrs ago, this is not difficult for me to do. If I get Chinese, I don't eat the rice.

I find that eating an omelet in the morning with 30 grams of protein, turns down cravings considerably.

What worries me about extreme diets, is that the body may lose the ability to digest certain things over time.

I am not sure an extreme diet like the ketogenic diet is necessary for PN. I'd like to see some studies to that effect.

There are some discussions on this at the PD forum:
Here is a list using "ketogenic" in a search there:
http://neurotalk.psychcentral.com/se...uery=ketogenic

That forum likes to post scientific articles frequently and discuss them.
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Last edited by mrsD; 03-26-2011 at 04:39 PM. Reason: fixing spelling
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Old 03-26-2011, 04:24 PM   #3
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http://informahealthcare.com/doi/abs...90849409003592
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Old 05-10-2011, 05:17 PM   #4
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Hi, new to this forum but I have been meaning to write about this for a few weeks now.

I'm a 34 year old who started getting PN symptoms about 4 years ago. Initially they were very intense in the hands and arms but have improved gradually with 150 mg of per thiamin day and a good diet.

Eventually the symptoms returned (with a new belwildering array of other symptoms too) and I accidentally came across the GAPS diet mainly because of the diarrhea that I had ever since the PN started. I always felt they were linked and had noticed anecdotally that diet seemed to play a role in my symptoms. After reading the GAPS diet web site I decided to give it a try.

Since starting about 6 weeks ago many of my symptoms have improved dramatically. The PN is always slow to repsond to improvement but for the first time in 4 years I have been able to stop taking the thiamin without the symptoms returning.

I truly believe the symptoms were due either to leaky gut syndrome, or because of bad bacteria in my intestines. This made all the more sense when I realised my poor diet and a 2 year long course of oxytetracycline antibiotics were very likely a major contribution to my intestinal problems.

I would encourage anyone suffering PN to take a good look at the gaps diet, it has done wonders for me (especially drinking kefir, which is a rich probiotic). Yes it can be hard work avoiding most carbs and sticking to the diet, but for me in comparison to suffering those symptoms it's a stroll in the park. Best of all you only have to do for 6 - 24 months :-)

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Old 05-10-2011, 06:32 PM   #5
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*edit*

The theory of the diet is that once someone gets in to a state of very poor intestinal health either through diet or medication, the bad bateria overgrow in the gut and produce nasty neuro toxins. By this point the gut lining permeability also breaks down and starts to allow these toxins and larger molecules of partially digested foods in to the blood stream potentially triggering a whole host of auto immune disorders and many other symptoms.

This is what I believe was the cause of my peripheral neuropathy. I understand that this may not by the case for everyone.

The only way to get back to full intestinal health is with three basic steps over the period of the diet:

* Repair damage to intestines and regrow villi with broths from HOMEMADE stock
* Avoid all carbs/grains/starches/flour/sugar except lentils and butter beans so as not to feed the bad bacteria
* Take High Quality Probiotics (kefir ideally) which recolonize the gut to aid digestion and keep villi in good health

Last edited by Chemar; 05-10-2011 at 06:58 PM. Reason: NT Guidelines
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Old 05-14-2011, 07:30 AM   #6
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Quote:
I truly believe the symptoms were due either to leaky gut syndrome, or because of bad bacteria in my intestines. This made all the more sense when I realised my poor diet and a 2 year long course of oxytetracycline antibiotics were very likely a major contribution to my intestinal problems.
Fuzzy Logic, are you eating gluten free now? Have you ever thought about gluten being an issue for you? Gluten intolerance often times causes leaky gut, which also can cause neuropathy, which is how I came to be a member of the neuropathy people!

I had a friend explain the GAPS diet to me, but there are too many foods in it that I am intolerant too, so I will not be trying it. He finds it helping him so much.
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