advertisement
Reply
 
Thread Tools Display Modes
Old 03-29-2011, 04:49 PM #1
adelina adelina is offline
Member
 
Join Date: Mar 2011
Location: California
Posts: 170
10 yr Member
adelina adelina is offline
Member
 
Join Date: Mar 2011
Location: California
Posts: 170
10 yr Member
Default neuropathy and joint hypermobility?

Does anyone have both of these problems at once?

Joint hypermobility is related to Ehlers-Danlos syndrome

I have a mild case and wondered is it related to my condition with ganglioneuritis
adelina is offline   Reply With QuoteReply With Quote

advertisement
Old 03-29-2011, 05:08 PM #2
mrsD's Avatar
mrsD mrsD is offline
Wisest Elder Ever
 
Join Date: Aug 2006
Location: Great Lakes
Posts: 33,508
15 yr Member
mrsD mrsD is offline
Wisest Elder Ever
mrsD's Avatar
 
Join Date: Aug 2006
Location: Great Lakes
Posts: 33,508
15 yr Member
Lightbulb

No diagnosis is cast in stone. Your real problem may be the joint hypermobility, causing your pain.

There is no way to prove the ganglioneuritis... but the Ehlers I believe has a genetic test.
http://www.mayoclinic.com/health/ehl...-and-diagnosis
__________________
All truths are easy to understand once they are discovered; the point is to discover them.-- Galileo Galilei

************************************

.
Weezie looking at petunias 8.25.2017


****************************
These forums are for mutual support and information sharing only. The forums are not a substitute for medical advice, diagnosis or treatment provided by a qualified health care provider. Always consult your doctor before trying anything you read here.
mrsD is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
adelina (03-29-2011)
Old 03-29-2011, 05:48 PM #3
adelina adelina is offline
Member
 
Join Date: Mar 2011
Location: California
Posts: 170
10 yr Member
adelina adelina is offline
Member
 
Join Date: Mar 2011
Location: California
Posts: 170
10 yr Member
Default

Thanks mrsD
I will check it out, but I don't know if I have Ehlers-Danlos, but a Rhuem has told me I do have HMJS. Thank you for website lead, according to it - HMJS is still an E-D sydrome. I am going to a new rheum I think and have some of these done.
adelina is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
mrsD (03-29-2011)
Old 04-05-2011, 09:22 AM #4
melon melon is offline
Member
 
Join Date: Oct 2008
Posts: 177
15 yr Member
melon melon is offline
Member
 
Join Date: Oct 2008
Posts: 177
15 yr Member
Default

Quote:
Originally Posted by Blaine View Post
Does anyone have both of these problems at once?

Joint hypermobility is related to Ehlers-Danlos syndrome

I have a mild case and wondered is it related to my condition with ganglioneuritis
I have HMS , and neuroapthy , i cant say it worsens when my joints are worse , but then my case is not typical so probably useless to you.

I have found some reliefs using supplements suggested by the like of MrsD and others here over the years but I tend to find sometimes - after longer use the effects seem to wear off like nootropics.

I found some relief with rebuilder before it started giving me tinnitus but aside from that only weed ( which was like bliss ) the odd time i tried it.

hope this helps



m
melon is offline   Reply With QuoteReply With Quote
Old 05-01-2011, 02:03 PM #5
mspennyloafer's Avatar
mspennyloafer mspennyloafer is offline
Senior Member
 
Join Date: Oct 2010
Location: ga
Posts: 1,471
10 yr Member
mspennyloafer mspennyloafer is offline
Senior Member
mspennyloafer's Avatar
 
Join Date: Oct 2010
Location: ga
Posts: 1,471
10 yr Member
Default

i have ehlers danlos and thoracic outlet syndrome (which I believe is mild) and i think a stretch injury to my brachal plexus

anyways, i think the ehlers danlos is keeping my body from healing properly. im desperate, going to try taking vitamins for awhile. im experiencing muscle atrophy which is making the tos worse but i can't do strengthening AT ALL because it fires my nerves up.

catch 22
mspennyloafer is offline   Reply With QuoteReply With Quote
Reply

Tags
bjms, ehlers danlos, ganglioneuritis


Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off


Similar Threads
Thread Thread Starter Forum Replies Last Post
Joint hypermobility syndrome adelina General Health Conditions & Rare Disorders 9 04-22-2011 01:24 AM
Joint hypermobility syndrome adelina New Member Introductions 2 03-29-2011 04:43 PM
Degenerative Joint Disease and Neuropathy Alice Marie New Member Introductions 3 05-26-2010 08:57 PM
Does anyone have hypermobility??? dance59326 General Health Conditions & Rare Disorders 1 10-20-2009 04:29 PM
Hypermobility and RSD ali12 Reflex Sympathetic Dystrophy (RSD and CRPS) 18 07-09-2009 07:07 PM


All times are GMT -5. The time now is 12:17 AM.

Powered by vBulletin • Copyright ©2000 - 2024, Jelsoft Enterprises Ltd.

vBulletin Optimisation provided by vB Optimise v2.7.1 (Lite) - vBulletin Mods & Addons Copyright © 2024 DragonByte Technologies Ltd.
 

NeuroTalk Forums

Helping support those with neurological and related conditions.

 

The material on this site is for informational purposes only,
and is not a substitute for medical advice, diagnosis or treatment
provided by a qualified health care provider.


Always consult your doctor before trying anything you read here.