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04-08-2011, 12:14 PM | #1 | ||
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I am so happy I went! I learned more in a 1 hour visit with the neuro than I have learned in 12 years of looking for answers in NYC
I hope you will find the following info useful for your own PN issues. Here goes: 1) having more than 1 cause of PN has a synergistic impact, ie, having chemo/toxic PN, combined with diabetes and very high triglyceride levels amp up the sx and the nerve damage. Here's his explanation: hypothetically, if diabetes is a 2 and chemo damage is a 2 and triglyceride damage is a 2, it does not add up to a 6. It will add up to something off the charts because all 3 causes work synergistically. 2) newest studies show that aerobic exercise performed at least 5x per week will stop the progression of PN. The chemicals produced during exercise help to heal the nerves!! 3) he suggested I take a statin drug to reduce my triglyceride levels. He assured me a statin will not worsen my PN. I do not know the results of the skin punch biopsy yet. I'll post them when I get 'em. I wish there were a NY equivalent of a Johns Hopkins. I am especially grateful to Nide (Bob) since without his posts, I would not have known about JH's excellence. And of course, without this forum I would not have had access to valuable support & information. |
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04-08-2011, 12:18 PM | #2 | |||
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Wisest Elder Ever
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There are posters here who have developed PN from statins.
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All truths are easy to understand once they are discovered; the point is to discover them.-- Galileo Galilei ************************************ . Weezie looking at petunias 8.25.2017 **************************** These forums are for mutual support and information sharing only. The forums are not a substitute for medical advice, diagnosis or treatment provided by a qualified health care provider. Always consult your doctor before trying anything you read here.
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"Thanks for this!" says: | antonina (04-08-2011) |
04-08-2011, 12:41 PM | #3 | ||
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That's exactly why I protested when he said to take one. He reassured me that it would not add to my sx. I guess the only way to find out is to try it...but I absolutely do not look forward to more drugs.
I think I will also research a non-statin way to reduce triglycerides. There must be some supplement or combo thereof that has worked. |
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04-08-2011, 02:33 PM | #4 | |||
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Senior Member (**Dr Smith is named after a character from Lost in Space, not a medical doctor)
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Quote:
Doc
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Dr. Zachary Smith Oh, the pain... THE PAIN... Dr. Smith is NOT a medical doctor. He was a character from LOST IN SPACE. All opinions expressed are my own. For medical advice/opinion, consult your doctor. |
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04-08-2011, 02:46 PM | #5 | |||
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Wisest Elder Ever
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The statistics continue to mount.... this guy obviously likes business. Either that or he has major stock investments with those companies making statins.
http://www.statinanswers.com/effects.htm Quote:
http://www.suite101.com/content/stat...effect-a221061 Guess I won't be going to JH any time in the near future!
__________________
All truths are easy to understand once they are discovered; the point is to discover them.-- Galileo Galilei ************************************ . Weezie looking at petunias 8.25.2017 **************************** These forums are for mutual support and information sharing only. The forums are not a substitute for medical advice, diagnosis or treatment provided by a qualified health care provider. Always consult your doctor before trying anything you read here.
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04-08-2011, 02:59 PM | #6 | |||
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as far as the exercize goes, of course if you are able to exercize doing so will benefit you in many ways, pulmonary, cardiac, circulation etc. That being said, many posters on here over the years have been runners, cyclists, body builders, mountain climbers, skiiers etc. and the exercize that they did did not prevent them from getting PN. Will it help to stop or even reverse the damage being done by pn, probably for some, maybe for others and not for the rest. Is exercize a treatment for PN?, i dont buy it.
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04-08-2011, 03:58 PM | #7 | |||
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Senior Member (**Dr Smith is named after a character from Lost in Space, not a medical doctor)
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Quote:
Doesn't mean I'm arguing for statins; I just have a problem with the guy's premise. Doc
__________________
Dr. Zachary Smith Oh, the pain... THE PAIN... Dr. Smith is NOT a medical doctor. He was a character from LOST IN SPACE. All opinions expressed are my own. For medical advice/opinion, consult your doctor. |
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04-08-2011, 05:55 PM | #8 | ||
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"Thanks for this!" says: | malawigirl08 (04-10-2011), mrsD (04-08-2011) |
04-08-2011, 07:09 PM | #9 | |||
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Antonina,
Maybe I missed something from your first post. Did he think you have more than one cause of PN? If so, what are the causes he thinks apply to your case and how did he come to this conclusion? Are you diabetic? Glad you were happy with the visit. JH has lots to offer. |
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04-08-2011, 10:09 PM | #10 | ||
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All of the above is not good news but at least I now have some answers. I had a great experience @ JH and even if I don't have ALL the answers, it's a good start. If it weren't such a major production, I'd like to go back for other health issues. You're lucky you can get there in 3 hours! |
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"Thanks for this!" says: | en bloc (04-09-2011) |
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