First, as we know - each one of us have his neuropathy and we all differ from each other. My neuropathy is the kind that I'm numb more or less all over my body, but most in legs.
I'm on a strict diet since last Augost - gluten free, no milk & product, no meat of all kind ect. Since this diet - I don't have the burnings and the pain I use to have.
The body sensations cause me to be sad. Not all the time - but from time to time I have flares of sadness. I feel that I have to talk to somebody, but I know no one can understand the stange feeling of numbness. or - those that can understand - I don't think they like to hear me again "crying".
In these days I feel so lonely.....
Good that you are there to "hear" me.

I hear ya, as we all do. I sent you a PM.

Wine and cheese are truly the only ones that totally understand what you and us are going through. Apparently Im supposed to give up msg, gluten, spices, night shades, shoes ,running , dancing , most physical activities, basically 70% of my normal life pre P/N

WINE AND CHEESE WILL STAY!!!

I have had abnormal neuro sensations for 2 years now. Fairly well controlled with 900mg Gabapentin and 20mg. Elavil. I still get many "break-thru" sensations, and yes I get that "sad" feeling. I can be going along ok (mentally and emotionally), than all of sudden the sadness overcomes me. If I had to explain it, I would say it is a mourning of my "before neuro problems" life. Also, I feel alone in these odd symptoms, not when I am on this site, but alone among my face to face friends.

Please know you can always come on here and vent and cry and whine, we all do it and we all understand.

You're lucky Zorro, I can't even have the wine and cheese!

I can definitely relate to the feelings of loneliness and sadness. While my family and friends do their best to be supportive, I feel as though they can not really understand what it is like to live with body-wide sensory neuropathy. I do my best to continue living my life as I had pre-neuropathy, but sometimes i feel frustrated and sad when I realize that, as much as I don't want it to define me, neuropathy has an effect on just about every aspect of my life. It's very difficult to accept, that more than likely, I will be living with neuropathy the rest of my life.

Got mine in 'O3 AND since then? Not many relate at ALL to the whole thing! Even DOCS! How many times can you say essentially 'feel "something"? but the rest is dead as a fence post! Crying when you're by yourself helps a bit? But I've found it exhausting. Save my energy for PT and or REVENGE. ON IT! Whatever IT is!
One good therapy? I don't often put out is to throw old pens down HARD on either a driveway or a kitchen floor.. [if there's any ink in these things? It can get messy and permanent] But it feels soo GOOD to throw these little things as hard as you can and watch them shatter [ideally]. I've only done this a few times, but? I found myself exhausted afterwards, and slept quite nicely! And, it IS a way to let out all that frustration safely. You also get rid of all those old pens you have lying around that never work when you need them!
Check out Deb? She's smart and has gone thru a heap dealing w/gluten issues I'm lucky not yet to have. She also will share w/you lots of good resources and sources to check out that you'd never thot of?
I'd think your docs would do a full metabolic panel on you? But if they've not? Wouldn't hurt to ask? Mainly it'd be your GP who would do this sort of thing....
Keep in touch as to what's going on.. or not? It's hard to keep track of this stuff in you don't keep a good calendar... I've often lost track of 'see you in 3 months...means? What?'
's!!!!!!!!!!!!! - j

When I'd had a horrid day at work, I would throw pot holders. I'd get the stress relief, nothing broken to clean up.

why Deb? im lactose intelorant but they do make a great lactose free fetta cheese cant tell the differance. No wine? Yes we shouldnt with meds I know however....

I know it is not consider "romantic" to complain about one situation. i did most of the blood work that have to be done in neuropathic condition, also all the neuro tests that needed and I'm diagnosed with SFSN caused by chemicals (toxic PN). I work very hadr to "clean" my body with a proper deit. read almost every thing about vitamines and suplaments. Eat mainly "raw food" and do some sports (swiming and water ecercises). but as some of you said - I miss the old me, before the neuropathy. and for this - I have almost nothing to do. I work hard to accept the new me, the new condition, but from time to time I'm too tired of being "strong". Some of the people around me (friends, my psyciastre) say that it is because I reach the menopause and all the changes in my mood are only hormones' imbalance. I know that this is not true. As I said in the first title - I just wanted to share with you and get your support that I'm not alone and that you are there "with me".
I'm not the kind of person who ask for informative questions, at least not all the time. I know to search the internet and can read and understand English, but I'm the kind of person that need understanding people, people that understand what I'm talking about - and these people - are - you. So, exceuse me for my "tears".
Again - thanks for being there for me...