advertisement
Reply
 
Thread Tools Display Modes
Old 04-23-2011, 09:51 PM #1
Ms.Dee Ms.Dee is offline
New Member
 
Join Date: Apr 2011
Location: Oklahoma
Posts: 1
10 yr Member
Ms.Dee Ms.Dee is offline
New Member
 
Join Date: Apr 2011
Location: Oklahoma
Posts: 1
10 yr Member
Default Feeling scared and discouraged

I have small fiber peripheral neuropathy. I have gone from a full work schedule with daily exercise routines and tai chi daily to being afraid that I won't be able to take care of my family. They all depend on me for financial help. I am scared and frustrated. I am all they have.

I started out on lyrica and within 6 months my hair was falling out in handfuls and my boss was frustrated because I can no longer perform my job the way I have for 15 years. Smart to stupid in a very short time. But it did help some. Neurologist wanted me to change to CYmbalta. Within 2 days I was sick weak and unable to function. Have also spent the last 5 days in lyrica withdrawal. Not fun.

I was fine one day and it's been a downward spiral for the past year. Are there any alternatives to the meds or is this just the way life is going to be? Thank you for reading.
Ms.Dee is offline   Reply With QuoteReply With Quote

advertisement
Old 04-24-2011, 10:26 AM #2
nide44's Avatar
nide44 nide44 is offline
Senior Member
 
Join Date: Aug 2006
Location: Chesapeake Bay, Land O' Pleasant Livin'
Posts: 1,660
15 yr Member
nide44 nide44 is offline
Senior Member
nide44's Avatar
 
Join Date: Aug 2006
Location: Chesapeake Bay, Land O' Pleasant Livin'
Posts: 1,660
15 yr Member
Default

There are many alternative treatments, but unfortunately they are either experimental or poorly ineffectual in most and only help a minority of PN sufferers.
The majority keep searching for the best mix of meds of the 75 or so that are used to treat PN. Once a balance is achieved, life goes on.......with compromises.
Its a chronic ailment and must be addressed positively to live as normal a life as we can, but life style changes and, PN pain management issues.... have to be addressed.
__________________
Bob B

Last edited by nide44; 04-24-2011 at 11:19 AM.
nide44 is offline   Reply With QuoteReply With Quote
Old 04-24-2011, 11:02 AM #3
mrsD's Avatar
mrsD mrsD is offline
Wisest Elder Ever
 
Join Date: Aug 2006
Location: Great Lakes
Posts: 33,508
15 yr Member
mrsD mrsD is offline
Wisest Elder Ever
mrsD's Avatar
 
Join Date: Aug 2006
Location: Great Lakes
Posts: 33,508
15 yr Member
Lightbulb

Welcome to NeuroTalk...

Sudden onset? That implies an autoimmune attack, food poisoning (Campylobacter or fish contamination), use of a drug that suddenly poisoned you-- Cipro, Flagyl, statins, etc., or some toxin in your environment you consumed...arsenic, thallium.
An injury to your lower back?

Most PNs of a metabolic nature, creep up on you over time.

You don't tell us what you have had tested...that would help point you in a direction to take.
__________________
All truths are easy to understand once they are discovered; the point is to discover them.-- Galileo Galilei

************************************

.
Weezie looking at petunias 8.25.2017


****************************
These forums are for mutual support and information sharing only. The forums are not a substitute for medical advice, diagnosis or treatment provided by a qualified health care provider. Always consult your doctor before trying anything you read here.
mrsD is offline   Reply With QuoteReply With Quote
Old 04-25-2011, 05:28 AM #4
daniella daniella is offline
Magnate
 
Join Date: May 2007
Posts: 2,998
15 yr Member
daniella daniella is offline
Magnate
 
Join Date: May 2007
Posts: 2,998
15 yr Member
Default

Hi I am sorry for all your pain. For me when I started Cymbalta I was so ill for about 2 weeks with nausea. I started on a low dose too at dinner which was supposed to help with that. Anyhow my pain doctor at that time said you may even throw up for a couple weeks but it will go away that feeling. It did. I am not saying you should or should give it time cause some side effects are too bad but just my experience.
I would encourage you to see a pain specialist/anestesolgist. For me they work more with pain control then the neurologist. Not just meds but alternative like acupuncture,tens,etc.
I can understand feeling scared and discouraged. That describes me too. I try to take 1 day at a time and do the best I can in that day. Many fears may not happen. I know this is easier said then done of course.
daniella is offline   Reply With QuoteReply With Quote
Old 04-25-2011, 11:13 AM #5
ginnie ginnie is offline
Elder
 
Join Date: Aug 2010
Location: Anna Maria Island Florida
Posts: 6,278
10 yr Member
ginnie ginnie is offline
Elder
 
Join Date: Aug 2010
Location: Anna Maria Island Florida
Posts: 6,278
10 yr Member
Default Hello Mrs. D

I am glad you brought up sudden onset of a disease. I have alopecia universalis that started my auto immune problems. It was a guess from Mayo clinic that I may have come in contact with thallium in the ground water. I also played with mercury from a broken thermometer when I was a child. These sudden virus like beginnings to many diseases, may indeed be happening because of polution. I do wonder how many of us started our degenerative conditions with virus like symptoms to begin with? Why are there more kids with ADD? I never even heard of that when I was a kid. I still remember polio in my neighborhood before there was the shot. It just seems to me in general, that maybe we are being exposed to things we know nothing about. Did I get my thyroid nodes (7) from too many CT scans and MRI's.? I am just in that questioning mode. thanks all, and have a peacefull and less painfull day. ginnie
ginnie is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
mrsD (04-25-2011)
Old 04-25-2011, 02:41 PM #6
boytos boytos is offline
Member
 
Join Date: Aug 2010
Posts: 493
10 yr Member
boytos boytos is offline
Member
 
Join Date: Aug 2010
Posts: 493
10 yr Member
Default

This is why i will never have a family^^ just more problems.
boytos is offline   Reply With QuoteReply With Quote
Reply


Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off


Similar Threads
Thread Thread Starter Forum Replies Last Post
So discouraged rose_thorn98 Peripheral Neuropathy 15 11-18-2010 06:25 AM
Discouraged need advice PegMeerkatz Multiple Sclerosis 12 10-25-2010 03:33 PM
Discouraged,overwhelmed,and tired Brokenfriend Bipolar Disorder 39 10-19-2010 08:45 AM
discouraged sunishower New Member Introductions 5 04-10-2007 12:02 AM


All times are GMT -5. The time now is 12:27 PM.

Powered by vBulletin • Copyright ©2000 - 2024, Jelsoft Enterprises Ltd.

vBulletin Optimisation provided by vB Optimise v2.7.1 (Lite) - vBulletin Mods & Addons Copyright © 2024 DragonByte Technologies Ltd.
 

NeuroTalk Forums

Helping support those with neurological and related conditions.

 

The material on this site is for informational purposes only,
and is not a substitute for medical advice, diagnosis or treatment
provided by a qualified health care provider.


Always consult your doctor before trying anything you read here.