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Old 05-12-2011, 05:04 PM #21
Killian Killian is offline
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Quote:
Originally Posted by echoes long ago View Post
Killian dont worry about it , you did nothing wrong. just ignore those posters that rub you the wrong way or who are not happy with the help you tried to give to them. If you look at post #5 on the same thread you will see what you are dealing with.
Echos thank you - I appreciate that. And yes I see.

I guess my thought too is - if something sounds too good to be true it probably is. Although I would like to give the red lights a try sometime, who knows.

If I was going to spend money I think I would want to try to be seen at The Center for Peripheral Neuropathy at the University of Chicago. I do however have a wonderful neurologist at home.

As I mentioned I have PN - just lucky because no reason can be found for it, mine is idiopathic. I don't have any "triggers" as mentioned in that post - my symptoms are constant, I have muscle weakness in my legs from it, it has started in my hands. My main goal is to not let it stop me from doing things - life is too short. I am not diabetic and will admit it is frustrating to always hear about "the heartbreak of diabetic neuropathy". My understanding from an article in the Neurology Now magazine is the percentage of those with PN who are diabetic is small.

I take a very low dose of neurontin because I don't like medication - I also go to acupuncture once a month, at first however it was 2x a week. Imagine my surprise when after 4 or 5 treatments I felt the liquid she was putting on my feet was cold - when I said oh that is cold, she just smiled and said it was supposed to be. So it has given me back some feeling in my feet - it also has helped with the lightening strike pains.

Shouldn't ramble. Thanks again echos.
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Old 05-12-2011, 05:22 PM #22
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Originally Posted by mrsD View Post
Here is a video from YouTube--
youtube.com/watch?v=mnTc3OQDRq8
Does not look like a laser to me.

The ad for the Denver clinic clearly uses LASER in it several times.
I think you should get clarification about this, since the two modalities are distinctly different.
Hi mrs. D

It seems the youtube video is from a different clinic - it is in Castle Rock, CO and called Helms Chiropractic & Wellness and the site says it uses "MIRE Therapy (monochromatic infrared energy therapy)", I didn't see laser mentioned.
castlerockspinaldecompression.com/custom_content/c_54568_neuropathy_treatment.html

The one that robpp mentioned is in Denver, and does mention laser
denverneuropathytreatmentcenter.com/

Thank you for the articles on the difference between low level laser and LED.
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Old 05-12-2011, 07:46 PM #23
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Hmm they don't have a very informative website - only the main page and nothing else??

I would definitely ask if it is really a LLLT or if it is instead LED light therapy.

I don't like misleading information by businesses or websites.

Maybe they were told or lead to believe it was a LLLT when they bought the machine... or maybe they are fudging the facts.
Easy enough for them to verify what they really have with a search online if they wanted to.

My chiro thought his first combo machine had a laser but when I was asking about it he must have looked it up online later and found it was only a LED, next appt he had a different machine..with real laser.

If only a LED that they are using , you could actually buy your own and treat yourself a lot cheaper than going to their sessions.
Quote:
Originally Posted by mrsD View Post
Here is an article that explains the differences between LED and low level laser:

http://docs.google.com/viewer?a=v&q=...fGyliqKRtIigwg

This article goes into more detail:
http://docs.google.com/viewer?a=v&q=...KIfzIVJ9EbYT7g

But I would definitely find out if this clinic is delivering LED light treatment using LASER studies like these two articles claim.

From the description of the "pads" it seems like LED... because the units for LED use pads.

Here is a video from YouTube--
http://www.youtube.com/watch?v=mnTc3OQDRq8
Does not look like a laser to me.

The ad for the Denver clinic clearly uses LASER in it several times.
I think you should get clarification about this, since the two modalities are distinctly different.


When i go on Monday I will ask the details about the machine.

THe tech showed me the foot part when they were taking it off. the lights were on. they were small red lights like LEDs. he even called them LEDs and said i could look but not directly.
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Old 05-12-2011, 08:01 PM #24
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also here is a scan of my sensory loss test given by this doc when i had my exam.

*edit*

Last edited by Chemar; 05-12-2011 at 08:55 PM. Reason: scan enormous and distorting entire thread
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Old 05-12-2011, 08:56 PM #25
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Rob

you will need to resize that pic to post it here. It was so large that it was distorting this entire thread!

also please remove the name and address of the doctor before attempting to post it again. thanks
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Old 05-12-2011, 09:46 PM #26
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Quote:
Originally Posted by Killian View Post
Echos thank you - I appreciate that. And yes I see.

I guess my thought too is - if something sounds too good to be true it probably is. Although I would like to give the red lights a try sometime, who knows.

If I was going to spend money I think I would want to try to be seen at The Center for Peripheral Neuropathy at the University of Chicago. I do however have a wonderful neurologist at home.

As I mentioned I have PN - just lucky because no reason can be found for it, mine is idiopathic. I don't have any "triggers" as mentioned in that post - my symptoms are constant, I have muscle weakness in my legs from it, it has started in my hands. My main goal is to not let it stop me from doing things - life is too short. I am not diabetic and will admit it is frustrating to always hear about "the heartbreak of diabetic neuropathy". My understanding from an article in the Neurology Now magazine is the percentage of those with PN who are diabetic is small.

I take a very low dose of neurontin because I don't like medication - I also go to acupuncture once a month, at first however it was 2x a week. Imagine my surprise when after 4 or 5 treatments I felt the liquid she was putting on my feet was cold - when I said oh that is cold, she just smiled and said it was supposed to be. So it has given me back some feeling in my feet - it also has helped with the lightening strike pains.

Shouldn't ramble. Thanks again echos.

Thats great that you have more feeling in your feet. Keep up the good work!
Coincidentally there was an accupuncturist MD at the last PN support group i went to and he said that the sooner after you get PN symptoms that you get accupuncture treatment the faster and better the results will be. I did get accupuncture treatment for my lower back pain and it worked well. At that time the accupunturist told me that there was nothing to be done accupuncture wise for PN. That was about 6 years ago.
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Old 05-12-2011, 10:00 PM #27
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Rob

you will need to resize that pic to post it here. It was so large that it was distorting this entire thread!

also please remove the name and address of the doctor before attempting to post it again. thanks

sorry

hopefully this size is OK itts less than 600 pixels wide now.....

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Old 05-13-2011, 12:58 AM #28
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Lightbulb more on acupuncture:

We have a thread here with new information about how acupuncture works. I then did an experiment with ribose, to see if it helps with ATP production in mitochondria and had substantial success.

http://neurotalk.psychcentral.com/sh...ghlight=ribose

If acupuncture works for you, it might be worth trying ribose to see if you can duplicate that effect yourself.
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Old 05-13-2011, 07:03 AM #29
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Default The "MIRE" therapy--

--or monochromatic infrared energy therapy, also sounds very much like what is known as Anodyne therapy, which has been kicking around the web and the pain mangment community for around a decade:

http://www.anodynetherapy.com/what_is_anodyne.htm

http://www.ehow.com/way_5364813_anod...treatment.html

Often, these therapy modalities use essentially the same mechanisms, but practitioners/manufacturers/marketers try to come up with different names in order to distinguish their particular product or technique and attract eyeballs.
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Old 05-13-2011, 01:46 PM #30
Killian Killian is offline
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Originally Posted by glenntaj View Post
anodynetherapy.com/what_is_anodyne.htm
$600 for the one model - says for feet but I didn't see anything that looked like it was for toes too. Lots of times I feel like gnawing off my toes - lot of times I feel like gnawing off legs at knees
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