Lets not deny insurance companies the use of the hat.

Joe- Insurance company claims adjusters and case managers.
Them's the ones who have hearts and souls as black as
the deeps of outer space.

tho guys and gals [whichever?] your comments on docs are priceless, regarding your PAIN?

Does it feel as if you've gotten a really BAD sunburn in the affected areas? Or as if you are constantly being zapped by a frayed electric cord at certain spots? OR worse having appendages doused with hot pan oil? Yep, these are symptoms at various onset or healing stages of PN.
As for the bone aches, do they feel as if some 'IMP' has taken a hammer to your bones from the inside out? Or as if they are allmost dissolving in the pain? These too are signs [to me at least] of a possible agressive PN, especially if the 'numbness, etc.' is still spreading.
Yes your doc would probably raise his eyebrows as you better learn to ARTICULATE your pain symptoms....AS WELL HE SHOULD! [Lazy sot!] Burning soles and toes are most common w/plain old PN [diabetic, alcoholic, hereditary and toxic] But, yours is getting a bit more complex for him, whether he admits it or not?
Pain increasing towards evenings IS a very common symptom for nearly ALL PN's tho. Keep in mind that what I callthe paybacks often occur after a busy day? See how/what/which stuff you do differently day be day causes extra, extra pains...keep a diary for a while...stupid things like what you ate [some foods can aggravate issues-see gluten threads], what you did day to day that were different or more [some things you may be DOING could be 'triggers'?] and all other little things [such as kids were awful today, or car broke down ...stressors and the like]. I kept a kind of shorthand one for months and months and found that there was nothing in my 'life' as it was that changed things other than the varied meds, supplements and treatments I've received.
STRESS? When you have this stuff, well you can't CAN'T LET the stress of having IT get the better[or worse] of you! The stress also can aggravate and/or contribute to UTI's...SOO It's not quite a telling you to 'chill out'...more like overloading your brain with facts then suggesting to your doc possible tests [start w/the cheaper ones on Liza Jane's sheets] that 'maybe we could check X & Y, doc? Please just put my mind at ease..'.. Betcha he'd not thought of some of the basics...Maybe LizaJane will come on and help w/the 'cheapies'? And then, guide you up the 'diagnosis food-chain so-to speak'?

David[Wings], Bob[Nide], Billye[Silverlady], Joe, Brian, kmeb, and melody all know about those pains, and going thru any kind of medical maze and, essentially 'Playing the Doc game'. Sad to say in any part of the world, it well..Happens?

Just keep stubborn and keep faith and strength to fight it all...I sure do hope you are one who GETS LUCKY! I'd cross my fingers and toes, but, the toes don't work? Hugs - j

I've had the very symptoms you're experiencing and it sounds suspiciously similar to the condition I have. Much like you, the symptoms came on suddenly and it was excruciating. It sounds like you may have Interstitial Cystitis. It is also an 'idiopathic' condition that is linked to autoimmune function within the body.

This is a great website that gives a good overview of symptoms, helpful hints for alleviating the related pain/discomfort, tips for diagnosis, etc:

http://www.ic-network.com/handbook/basics.html

I first experienced these symptoms in 1998 and had excruciating pain for about 8-10 months before I realized that this condition was what I had. Then I learned some coping mechanisms that helped immensely. I did not end up taking any prescription meds, but rather found a natural route (including the supplement Algonot that they mention on the site). At this point, I usually have a 'flare up' once or twice a year.

Good luck to you,

Andrea

I have experience with that and have also been diagnosed with Interstitial Cystitis. There has been some question over whether I have it or not, but then not much is clear cut with other issues that I experience either. At first, it was believed to be a urinary tract infection, but symptomwise, for me, the difference is that the bladder burns when it fills up, NOT when it empties, like when you have Cystitis and you dread going... When it empties, it is a huge relief.... Until you begin to be aware of it filling again at a certain point.

Get this: Urimax and Urelle, were most effective in relieving this pain, which can be miserable. Both have been taken off of the market. I am not sure why, but the pharmacist said it had to do with its affect on blood pressure.

For some reason, it also helped with the allover burning pain. Sooo... Here I thought my PN was getting better and my blood pressure was returning to normal range and I find out it is probably the bladder medication...
Go figure...
Cathie

P. S. One doctor told me that this can be present with various autoimmune diseases...

You do have such a great way with words! I love your "Second Level Hell."

Cathie

Thanks to all of you, I am learning so much from this PN community and that is making it so much easier to deal with the PN. I seem to be “taking” more that I am “giving” but I am right at the beginning of my PN journey. You are all incredible people! Thanks and sorry if I seem only to be posting with questions and more questions………….