[Junebug54]

Hi
I am a 58 year old woman. I was in a car accident December 2009 and since then feet went numb, tingling and within 6 months they were burning & in in terrible pain. The Dr. told me I have neuropathy, not much you can do for it. No tests run. Throughout a year I begged my Dr. to run test to no avail and he tried me on pain plls of gabapentin, antitryptyline, they messed me up. I changed Family DR. July 2011, he ran blood work, Mri orderd for my spine, bone scan of feet, exrays of feet , 2 EMG's from 2 Neurologists.
Sent me to a a pain clinic in which I am on 300 mg of lyrica at breakfast & supper;60mg cymbalta at breakfast; 30 mg of morphine at supper. A sleeping pill for bed & oxicodent at 4 pm or if I need it. My feet are so sensitive; toes do not move, pain always for both up past my ankles. My hands hurt as well. I have now seen a Nurosurgeon who did a sural nerve biopsy. I now see a Dr who is neuromuscular & he has diagnosed me with NSVN. I take prednisone daily as well as IVIG treatments every 4 weeks. Tomorrow is my 3rd one. I have not noticed any difference . My feet have started to drop & the Dr. is trying to prevent this. Has anyone had this IVIG & how do you feel? thanks June

[mrsD]

Welcome to NeuroTalk:

For others here NSVN= Non-Systemic Vasculitic Neuropathy

Vasculitis is typically an autoimmune situation, and I guess this is why you qualify for IVIG treatments. This is inflammation of the blood vessels, which can reduce circulation of the blood to various body tissues.

If your neuropathy is truly an autoimmune assault, then the IVIG should work to some extent.