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-   -   Oh oh -- PN getting worse! (https://www.neurotalk.org/peripheral-neuropathy/152639-oh-oh-pn-getting-worse.html)

linter 07-08-2011 04:22 PM

Triggers -- man, that's a lot of stuff to think about!

meanwhile, i got my files from my current neurologist and i see that i had genetic testing done in 06 and CMT was ruled out. (wow, is my memory bad). i see the new guy on the 18th. i'll be very interested to see what he says ...

JB63 07-08-2011 05:14 PM

http://vimeo.com/11674104

***Excellent*** video explaining the disease and treatment it a way that is easy to understand, but not to simplistic. It was initially thought that I had CIDP, but spinal tap and the blood work basicall ruled it out.

This is the parent site to the video.

http://www.gbs-cidp.org/index.html

linter 07-09-2011 07:09 AM

Quote:

Originally Posted by JB63 (Post 784887)
http://vimeo.com/11674104

***Excellent*** video explaining the disease and treatment it a way that is easy to understand, but not to simplistic. It was initially thought that I had CIDP, but spinal tap and the blood work basicall ruled it out.

This is the parent site to the video.

http://www.gbs-cidp.org/index.html

thanks. i'll check it out!


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