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Oh oh -- PN getting worse!

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Old 07-08-2011, 04:22 PM #21
linter linter is offline
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Triggers -- man, that's a lot of stuff to think about!

meanwhile, i got my files from my current neurologist and i see that i had genetic testing done in 06 and CMT was ruled out. (wow, is my memory bad). i see the new guy on the 18th. i'll be very interested to see what he says ...
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Old 07-08-2011, 05:14 PM #22
JB63 JB63 is offline
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***Excellent*** video explaining the disease and treatment it a way that is easy to understand, but not to simplistic. It was initially thought that I had CIDP, but spinal tap and the blood work basicall ruled it out.

This is the parent site to the video.

http://www.gbs-cidp.org/index.html
Last edited by JB63; 07-08-2011 at 05:19 PM. Reason: trying to link
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Old 07-09-2011, 07:09 AM #23
linter linter is offline
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Quote:
Originally Posted by JB63 View Post


***Excellent*** video explaining the disease and treatment it a way that is easy to understand, but not to simplistic. It was initially thought that I had CIDP, but spinal tap and the blood work basicall ruled it out.

This is the parent site to the video.

http://www.gbs-cidp.org/index.html
thanks. i'll check it out!
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