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Old 08-07-2011, 06:35 AM #31
glenntaj glenntaj is offline
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glenntaj glenntaj is offline
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Default My suspicion--

--is that your radiculopathy in the spine (radiculopathy refers to a subset of neuropathy that involves compression or compromise of nerve roots) is still involved, despite the operation. But your other situations may well be contributing to nerve pain now (hypothyroid, for example, is know to cause neuropathy, especially in narrow areas in which nerves have to pass through to extremities and are prone to compression, such as the carpal and tarsal tunnel areas).

The swelling may also be contributing; there is the "double crush hypothesis", in which multiple insults to nerve create symptoms that are more than the sum of their parts (you may have started with radiculopathy symptoms and now swelling, hypothyroid effects, etc., are exacerbating things).

You may also want to look at the Reflex Sympathetic Dystrophy/Complex Regional Pain Syndrome board here, which might be a possibility, given your surgical and other trauma:

http://neurotalk.psychcentral.com/forum21.html

I don't think any of the vitamins/supplements you've mentioned can hurt you in the doses mentioned; just make sure you take the B12 separately, apart from anything else, and apart from any food by a few hours, in order not to interfere with its absorption.
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Old 08-07-2011, 05:10 PM #32
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SeamsLikeStitches SeamsLikeStitches is offline
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Heart It has taken me seven years to accept my disease!

Hey Bob... I'm back! I love your advice, and I often hear you in my head when I'm doing things like "walking barefoot on the kitchen floor" or not sticking to my medications on a regular schedule.

I was diagnosed seven years ago. I am FINALLY accepting the fact that I will never wear high heels again. That I will probably never work a real job again. That I can't live in a 2 story house, and that no matter how much my brain "thinks" I can do, my body just isn't going to keep up!

Learn to accept it, make the adjustments, and your life will be a lot easier.
The biggest lesson this disease has taught me... and the hardest lesson, has been humility! Many of you who have been here a while know, asking for help for me has been the biggest challenge of my life! I finally got over that.

All of you here still guide me daily, even if I'm not here reading your messages. But that's why I'm back. I miss you all!
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Peripheral Neuropathy Since 2004
Learning to give my mind and body the care and feeding it needs to serve me to the fullest, so I can continue to be here with my family and friends.
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Old 08-07-2011, 09:26 PM #33
ger715 ger715 is offline
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Default

Thanks Glenn, I will check out the boards you mentioned. I am taking the Mehyl B12, the way you had suggested, as well as other vitamins you mentioned when we did previous posts. I was thinking of adding the Benfotiamlne B1. Do you think that might be of some help?
You have put things in prospective with all the other things I am dealing with. I have felt they all contributed to the continuous pain. I also am deficient in Vit D which the doctor has me taking extra D and checks with the lab work. My thyroid is checked along with TSH lab work every 4 - 6 mos. Coming to this site was the first time I had seen hypothroid playing a part of my sympthoms.
Pain is 24/7. Something else had been mentioned in some of the posts I have read since coming to this site. That is - Acceptance.That took a while; but along with a lot of prayer; am determined to reclaim my life as it is now and make the most of what I do have.
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Old 08-18-2011, 01:48 PM #34
karsten karsten is offline
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I was pretty terrified 1-1/2 years back when my symptoms started. I'm still a newbie, but I'm definitely in the acceptance stage right now. I have done quite a bit of research since then, but oddly enough just stumbled onto this site about a month ago. This turned out to be a blessing since I can now relate to people with similar problems that I am facing. I'm also hopeful I will learn and maybe in time offer my own advice.

Thanks to all especially the veterans in contributing so much to this community.
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